So upset & don't know what to do?! - Endometriosis UK

Endometriosis UK

72,876 members53,249 posts

So upset & don't know what to do?!

Kirstiexxx profile image
6 Replies

I paid to see an endo specialist on the bsge list privately, thinking I would be on their list to be operated on and up until now I have been led to believe that was the case. My operation is this Friday, to only be told today it won't be no endo specialist off the list, someone from their fertility clinic but does excision. I have no idea what to do I've waited best part of the year to get to this after 2 failed laparoscopies previously. I really thought going about it the way I did would of ensured it much more xx

Written by
Kirstiexxx profile image
Kirstiexxx
To view profiles and participate in discussions please or .
Read more about...
6 Replies

Are you having the surgery done privately as well or as an NHS patient? If you're having it done as an NHS patient you sadly may not have your pick of surgeons but to work at a bsge centre they have to be pretty highly skilled.

Kirstiexxx profile image
Kirstiexxx in reply to

No on the NHS. She's under the fertility only team, I can't find her listed on the bsge or endometriosis centre website the hospital has there's very little about this surgeon apart from family planning

What happened during your previous two laparoscopies? X

Kirstiexxx profile image
Kirstiexxx in reply to

The first one they claimed at first they had ablated the endometriosis and I was kept in hospital for a few days quite rough, found out 6 months later they hadn't done anything and something technical went wrong, my next op didn't do much and the gynaecologist admitted anything deep etc he wouldn't of seen.

Stellauk profile image
Stellauk

Sadly on NHS, seems to be you get operated on by the surgeon of that day. Is there any way to change and ensure you ge the surgeon of your choice? 🤔

Kirstiexxx profile image
Kirstiexxx in reply toStellauk

Luckily the specialists secretary has been so helpful and I'm waiting to hear back how long the wait is to be operated on by them instead 🙂

Not what you're looking for?

You may also like...

don't know what to do

Hi Iv had endo since june, since Novemeber I have had a new pain to which the doctor put me on...
kayjayne profile image

Don't know what to do....

I was diagnosed with endo about a year ago. The pain has always been bad on my periods but always...
charlotteps profile image

Don't know what to do?

As I've said before I had a lap in November and they said they burnt away my endo but im still in a...
paigeharger16 profile image

Decisions decisions! Hysterectomy at local hosp or excision at specialist centre with a long journey, don't know what to do for the best

Hi everyone, I could really do with some help today as I try to decide what to do next. I have endo...
Eggcustard profile image

Just don't know what to do!!!

I'm sorry this isn't exactly endo related but hoping some of you might understand..... I need to...
Mummykay profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.