Hormone treatment for endometriosis

[Jls8990]

Had my laparoscopy last week and been diagnosed with endometriosis. Doctor managed to remove the endo but I have been told that I will need to go back on the pill or have coil fitted to avoid endo coming back. I 100% don't want the coil, and don't particularly want to go back on the pill as it gave me depression. Has anyone tried anything else that has worked well?

[Stellauk]

Was all the endometriosis lesions excised? The consultant I saw said hormone treatment may help to prevent endometriosis come back after total excision. However if I don't get on with them then it is ok to leave them.

There is not a lot of scientific evidence to support the use hormone treatment for preventing recurrence. The key is total excision rather than medication.

Hope this helps.

[Jls8990 in reply to Stellauk]

I think it was all removed, but he did seem very adamant that I would need to go on to something to prevent it returning. I am due to have my follow up appointment within the next 5 weeks so I think I'm going to wait until speaking to him then to find out my options. Thank you for your help!

[Hidden]

May I ask why you are so against the idea of the Mirena coil?

I only ask because I was against it but then had it inserted during my second lap and I've done really well with it, I had four months of irregular bleeding which seems to have settled down and aside from that it's all been good X

[Jls8990 in reply to Hidden]

I've heard quite a few horror stories from people I know with the coil. The pill did work for me before with everything else bar depression but because that Is such a big side effect for me it is making me reluctant to go back on it. Thank you for replying!

[Hidden]

In my experience excision without ongoing treatment can lead to reoccurrence, mine is stage 4 X

[Jls8990 in reply to Hidden]

Oh my goodness. Do you mind me asking what stage you were diagnosed with to begin with?

[Jls8990]

Thank you, yes I thought that was the case. I am going to wait to see the consultant for my follow up appointment to see what my options are. Thank you again!

[jesslrees13]

You could try primrose oil tablets

[Bethaney_B]

Following with interest... The pill sends me completely loopy (over the years I've tried them all), I don't want to try the coil (my mum works in radiology dept at hospital and they see so many women going in because the coil has got lost / gone wrong)... I was told this week that I was referred for laparoscopy... I wish the pill agreed with me