I've had endometriosis for 24 years and many operations for it. I've been back to my gyne who is sending me for more tests including an MRI scan and a colonoscopy because they are worried it is now in and around the bowel again. Yet when I went to see the gastroenterologist today be dissed the idea of them putting me for these tests stating "a lady your age with the amount of operations you have had has constipation so nothing will show in the test. If you take picolax your bowel will kick start and you'll be fine". Then he came out with I need to be eating soluble fibre not non soluble and to make sure I understood, as if I was daft he wrote it down as 'soluble tick non soluble cross!!' Although I'd just finished saying all fibre causes me a lot of pain, to the stage of rushing to the bathroom in so much agony its not worth eating anything so try my best to stay on a low fibre diet. Which for me consists of protein, lettice, tomatoes and cream and normal cheese, mouse, ice cream and jelly.
I came away from that consultation in tears, I'm so fed up of being ignored when it comes to speaking to doctors about my insides. I feel they think I'm making it up to get attention or something. Yet all I want is a normal pain free life where I don't spend most my days curled up in pain either on the sofa or in bed with a hot water bottle.