This is my very first time here. Admittedly, it took me a while to land on the forum out of fear that I would be faced with the usual doom-mongering and negative messages that flood health websites - but I am relieved to see that most posts seem constructive.
I am writing with the hope that we can all start a positive discussion on what has contributed to alleviating our symptoms of the disease, if not hear from examples of long-term recoveries. Would you be kind enough to share what has worked for you, and if you find necessary, what definitely hasn't?
On my side, I was diagnosed with endometriosis a little less than a year ago, after suffering all of the usual limbo associated with the disease. Rather surprisingly, I have never suffered from acute period pain; I have however had years of urinary problems, including difficulty passing urine, due a hyper-contracted pelvic floor, very likely stressed by the endometrioma in my ovaries. As time has gone by, I now suffer from chronic pelvic pain, bloating, and constipation, among other glamorous symptoms.
These are the tips that I find have most helped me so far:
1) Women's physiotherapy. I have found that women's physiotherapy has been immensely helpful in addressing my urinary, sexual - and possibly bowel - symptoms. For months now, I have been going every three weeks to see a physiotherapist in West London to help release my pelvic floor. Although still present, my symptoms have considerably diminished, and I can also bet that my sexual life has been enhanced as a result of more supple pelvic floor.
Here are the details of my excellent physiotherapist, if of any use:
2) Exercise. Whereas I was mostly sat at a desk writing prior to my diagnosis, albeit with the occasional hike, I have now taken a subscription at a gym and I find swimming three hours a week also alleviates my symptoms and brightens my mood.
3) Massage. Has eased my pelvic and lower back pain.
OTHER - My physiotherapist, Christien Bird, has told me that there is an excellent GP surgery specialised in women's health based in Stoke-on-Trent. She is to forward me their details soon and I will make sure I report here on my experience with them.
How about you? I would be more than grateful to hear your constructive thoughts.
Very best regards,