Is this diagnosis and treatment normal? - Endometriosis UK

Endometriosis UK

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Is this diagnosis and treatment normal?

BernieM profile image
5 Replies

I've been diagnosed with endometriosis after ultrasounds and MRI scan. The gynaecologist has suggested an operation to remove my ovaries to stop the cysts. I've read that a laparoscopy is the definitive method of diagnosis but no one has mentioned this so far, nor have I found anything to suggest this operation would b advisable. Does this sound a normal process so far? Also does anyone have headaches associated with Endometriosis?

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BernieM profile image
BernieM
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5 Replies
subhan123 profile image
subhan123

Agree with Lindle... it is not the normal process, i also have recurring cysts in my ovaries due to endo. But i had a cyctectomy to remove those which grew more than 4cm. There might be repercussions of removing ovaries and please get second opinion before you go through it.

Tboag profile image
Tboag

Defo go get a second opinion, ask gp for a refferal to a bsge specialist centre, x

happyseal profile image
happyseal

Hi Bernie,

If I may tell you my own diagnosis experience. Well, I was diagnosed in China and the approach is different form here in the west. What my gynachologist did was first a ultrasound (this on the first appointment that I my gp said I should see a gynachologist, and I did go to my doctor because I was always tired, with pains, etc. So I though I had, again, anemy with iron deficiency). So the gynachologist found some cysts, different sizes etc, and I had pain during the vaginal ultrasound and the one she did with her hands (I never remember the names for this ones :)

Because of the cysts the gynachologist asked for blood exams on the C1.99 and C1-25 which were high. So she diagnosed me with endometriosis straight away (I do have a sister with endo) and asked me if I wanted to try chinese traditional medicine. I said yes and had to take the tradicional medicine pills for 3months.

So no surgery at all, and for my readings so far, a lot of woman still have pain after surgeries and they are not a cure. In fact, there isn't a cure, but a life changing approach. You can accept surgery and take the chance and see if it works for you, or you can try natural approaches and see if they help. If you remove your ovaries this will affect your hormones even more because the ovaries produce them. Some people say they reduced thei'r cysts with castor oil packs, or using serraptese enzymes, etc. Last time I went to the gynachologist in China, I didn't have a lot of cysts but just one, the bigger one, and all I have done was changing my diet and taking the chinese medicine for only a month, and taking some supplements. I am trying the serraptese right now and after a while I will have to do a ultrasound to see how the cyst is, it'll be my first appointment here in UK and I am afraid that western doctors are bias when it comes to traditional approaches.

This is just my own story, but it my help you. In my case I don't even want any surgery on my ovaries because I don't have any children yet.

Shelly92 profile image
Shelly92

Bernie

You are a smart lady to figure that out .

Jumping into a surgery to remove your ovaries is pretty drastic as they really have not even looked with a scope

I think I would get away from the dr and find another

BernieM profile image
BernieM

Hi Lindle, thanks for the message. They seem to be jumping to surgery without the Laparoscopy but also thy say I have lots of cysts, some chocolate cysts, which may be attached to the bowel. A bowel specialist surgeon would be present at the op. Because I'm 44 he suggested taking the ovaries now as they endo is fed by the cycle of the ovaries and by 50 the menopause would start and the endo would stop. This surgery would start the menopause immediately which has its own problems. I'm just completely confused. No where else is this path described as a 'cure'. I'm speaking to my GP tomorrow who referred me in the first place to discuss. Has anyone lose been given thIs surgery as an option?

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