Hi - I had my hysterectomy at the end of May this year, as I had severe endo and adenomyosis. I had tubes removed and left ovary ( as very damaged by endo). They left my right ovary and my cervix in,telling me I needed to keep my cervix for my pelvic floor.
It's been a rough ride since! I felt OK ish for the first 4 weeks or so. Then started feeling unwell.... To cut a long story short- blood tests revealed my remaining ovary had failed. I've tried 3 lots of HRT and am coping on the gel estradiol at the moment.
However, I'm getting really bad pain in my lower back and left hip again?! I had this really badly before my operation. I've had scans and X-ray on hip - told they can't find anything and I'm on list for physio now ?!
I'm concerned about the ovary that has failed too.... Is it safe to leave it there or can it turn into anything sinister?
I've been getting incredibly tired again also - in fact it's more than that - I'm absolutely exhausted if I do anything mildly exerting :/
I flip from feeling my skin crawling and itching all over at night so I can't sleep - to sleeping all day and then sleeping all night after I've sorted my kids out. I still feel like I have no energy or get up and go.
Don't get me started on my moods ? Oh boy, I even hate myself, I go from calm to nuclear in 5 seconds - and sometimes for no good reason .. It's like I'm watching myself when I'm like that - and I can't believe it's me behaving like that?! Is this normal ?
I have been really suffering with migraines again too! I hoped these would be relived after my hyst - I only had s temporary break from them. My GP has also diagnosed me with temperomandibluar disorder ( not sure of spelling!) and the pain I get on the left side of my head and left side of neck is excrutiating. I'm still getting awful pins and needles in my hands? Had nerve testing done for carpal tunnel and it's not that- physio thinks it's just wear and tear and I can have injections in my hand if no better in next few weeks?!
What's really weird is I now have a numb/pins and needles sensation over the top of my left foot? It's been like this for two days solid now - never goes - just constant... Could all this be related to endo on various ligaments that I had ( maybe still have?) or am I just going bonkers?
Can anyone relate to me? How do I get sorted out? Will the moods, hot flushes, skin crawling etc start to stop the longer I'm on this HRT? ( been on it 6 weeks this week)
I feel like everyone is saying - "well you've had the hysterectomy - so there can't be anything wrong with you now"
Thanks for letting me moan... Just feel so fed up with it all.