So confused: So I know an operation in... - Endometriosis UK

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So confused

Nikkilouise profile image
11 Replies

So I know an operation in general is daunting. But have any of you ever thought it's not the right decision/option?

I've had three opinions and although it was adviced I got the final decision and I agreed to have my ovary removed, and endo removed and anything else that needs doing in theatre.

But now the dates getting closer, I'm so nervous about it. Like if I think about it I feel physically sick and so emotional! I've never felt like this before any of my other ops. (Sure nervous the night before but not this much). Constantly thinking what if I regret it later on? (I'm 20- no children. Pco on the ovary I'm keeping). Any advice would be greatly appreciated! — feeling confused.

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Nikkilouise profile image
Nikkilouise
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11 Replies

Hey

I just had my lap done yesterday. Freaked out the entire time up until then. I did tons of research and found out everything they could possibly do. That made me feel like I had more control over the situation. (I did not want the uterine manipulator used since I have PTSD and it made it very hard for me).

I was told it's best to get these things taken care of young (I'm 21). I didn't know what they were going to find in me as it was diagnostic. They found a patch of endometriosis that was removed. They said it's good I caught it early before it spread and caused organ damage. I can now be taken care of properly. And I have PCOS as well.

I have tons of posts on my page so feel free to read through them. I have been keeping everyone updated on my progress. There's a lot of supportive and informative comments there as well.

I felt I made the right decision. I was sick of the "wait and see" option and I didn't want to be treated for something I didn't have. But now I know and it is a huge relief.

Nikkilouise profile image
Nikkilouise in reply to

What did you have done chick

Thankyou so much x

in reply toNikkilouise

I had a diagnostic laparoscopy in which my surgeon found a patch of endometriosis that she removed and I believe some cysts may have been drained. I will find out more during my post op appointment. I have 3 small incisions that don't hurt too bad.

Nikkilouise profile image
Nikkilouise in reply to

Oh yh I've had four laps. Looks after yourself chick

in reply toNikkilouise

Oh I didn't know my bad x

Nikkilouise profile image
Nikkilouise in reply to

Don't be silly it's fine! Thanks huni

Everyone I've seen has told me not to have surgery as I'm young yet hasn't really told me why this is an issue or listened to the fact I want kids soonish rather than in my 30s. I guess if you know what's best for you then go for it, also surely they wouldn't recommend you for surgery if they didn't think there was a need, so it's not like it's a waste of time. I'm the same age as you but wanting kids in the near future so it's a good step for you to be doing something that improves your life bc no one wants to be dealing with this much pain, especially at 20!

Try and keep your mind off it as best as you can, there's plenty if distraction techniques out there for anxiety. Good luck with it all! x

EmmaSmith33 profile image
EmmaSmith33

Hi Nikkilouise I'm a lot older than you (45) and I'm post total hysterectomy ovaries and Fallopian tube removed 15 weeks ago!! A general laparoscopy for diagnosis purposes is a useful op as they can see what's going on with the camera and sort out any impending problems!! To be honest the younger you are it's better to get things sorted before it gets out of hand i.e. Endo is difficult to treat so if they get it early that will hopefully help it from getting too bad. So think of it that way that you will get some answers and maybe prevent it from getting any worse.😄 Before my op I was very nervous and because I was feeling well on the day you do question am I doing the right thing? However all the team are used to patients being nervous and they will help to calm you down. I was given a sedative before my GA that was amazing but they do not routinely give that!! Just try and be positive you will be fine I'm a sister in the NHS and I probably made one of the worst patients😘😂 look after yourself try not to worrry if you want any more advise just ask😄😘

Nikkilouise profile image
Nikkilouise in reply toEmmaSmith33

What's recovery like chick?

I'm so nervous two weeks before. What am I going be like on the day 😫

I'm having a depression review Monday see if I can up my tablets help with anxiety a bit

EmmaSmith33 profile image
EmmaSmith33

Recovery is what it is everyone is different but laparoscopic procedure entails using co2 so most of the pain is from the gas in your shoulders ribcage etc feels like trapped wind!! This will shift with gentle walking and moving about peppermint tea is good for this and it can last for up to 5 days post op the rest of the recovery will depend on what you have done😄 It sounds like your an anxious person anyway so perhaps getting something to help you over the next two weeks will help!! The good thing about this site is everyone knows what you going through and it's natural to feel like this!! My recovery was fab I had a bsge surgeon with minimal incisions and I was back to work after 5 weeks and been fine since!!! I'm even back to running and the gym so being positive certainly helped me plus the amount of pain and generally feeling ill I was in this was the best option for me😘😘

Nikkilouise profile image
Nikkilouise in reply toEmmaSmith33

Yeah I get the gas from the laps.

I was just thinking of time of work etc. I've booked three weeks off so far but can always extend if needed.

Thankyou. I'd be lost without this site

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