Has anybody had just ONE ovary removed? - Endometriosis UK

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Has anybody had just ONE ovary removed?

teacosey profile image
46 Replies

Hi there

I am totally new to this site. Really hoping some ladies have some advice for me. Apparently I may need to have my left ovary removed.

Has anybody had just ONE removed?

Did it affect your cycles? Your moods?

Did it help your endo symptoms at all?

Do you need to take drugs or HRT after?

If you had a cyst on that ovary, did you get a cyst again?

Thanks!

Tea Cosey

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silverandglass profile image
silverandglass

Hi Teacosy

I had one of my ovaries removed in 1992 when I was 24. This was after being in absolute agony for months/being told I had a urine infection. Due to being left for so long, I had to be cut from hip to hip as on the day of my investigative laporoscopy, they gave me a scan and saw a cyst the size of a gala melon on there. I wasn't told this and was very shocked when I came round from the anesthetic to be attached to drips, drains and bed ridden without even being told what I'd had done.

So after being told that I'd had a chocolate cyst some weeks later (at that point I was also not told this was Endometriosis!) so my first reaction was that of deep regret that part of my 'womanly' bits had been taken and the worry that I would not be able to have any more children. I was told that everything would be the same as one ovary compensates for the lack of the other.

I am not sure I could be certain with my answer to you about how it effected me. All I can say is mentally, I was upset for a very long time about my missing ovary. As I wasn't aware of this being Endo, I can honestly say the symptoms I had after and continued to have for the rest of my life - depression,(which I suppose you could say were up and down moods but all that GPs can offer you for this is Evening Primrose and anti depressants) pain, exhaustion, the most heaviest periods I had ever had, with longer than average bleeding than most people 7 - 10 days, the suprise at having other symptoms, hot flushes, weight gain, excessive hair, which on further investigation was PCOS (at the time, I thought that was what my previous cyst was as still hadn't had any explanation). Basically, due to these symptoms, I was thinking that indeed it was due to my missing ovary. Some years later I managed to get another lap done and only then did the consultant who carried out my 5 hour operation, did I find out it was Endo.

Bottom line, I am convinced the symptoms became worse due to my missing ovary but again, Endo caused the cyst in the first place..... and yes, my most recent lap (3 weeks ago) they found 3 x 3cm cysts on my 'floating' ovary which was not floating any more due to being stuck to the back of my womb.

Don't worry too much, that is my experience and on further investigation, there are a lot of sites that explain that having one ovary is no different to having two, hormone wise, so HRT is not necessary.

All I can say is eat to fulfil your optimum health as I am convinced that if I hadn't, it would have been a lot worse/aggravated the hormones more.....

Good luck and insist you do not want it removed if the cyst you have is not too large to save the ovary x

Liz1969 profile image
Liz1969

Hi - I had an ovary removed last year due to a large cyst, within 2 months a large cyst had grown on the other ovary so had to have the second ovary removed this year. Haven't had any menopausal symptoms yet at all though so not taking any HRT.

jayneeb3 profile image
jayneeb3

Hi I had my right ovary and tube removed in October, and had no periods for the 1st 2months, not wanting to scare you but I have had some other symptoms since and still undergoing investigations. I had had no HRT after my op but since my periods started again they are pretty much the same as before, I have a cyst on my left ovary too and have just discovered I have a fibroid. I still get the pain in the right side I had before my op. Have been very weepy and moody since don't think my hormones have levelled out yet after 9 months. Hope this helps and everyone is different remember x

Impatient profile image
Impatient

I had my left one removed a couple of years ago and I don't miss it one bit.

The other one has since given me lots of problems with cysts, but then the removed one also got removed due to cysts.

As for periods and HRT and everything...1 ovary is quite enough to keep the whole system working without any extras.

A sizeable number of ladies are only born with one ovary anyway. You only need the one, as long as it is working, to still protect your heart and bone health.

You can still have a pregnancy with one ovary, if the tube on that side is clear and the uterus is still okay too.

After mine came out I was on zoladex and then the mirena, so they stopped my periods ---which was absolutely fantastic...and stopped any mood swings too.

But having one taken out wouldn't change what two were capable of doing to you. Your periods may be a bit erratic after any surgery at all, even dental surgery, so any changes in your cycle could be simply attributed to the op rather than the removal of one ovary. Getting pregnant naturally is 50% lower, but then there is the bonus of no more cysts on that side to make up for the inconvenience.

It made a huge difference in pain relief on the side it was taken out. But the other one is still working and making a darned nuisance of itself.

All my pain troubles these days come from the right side where my one remaining egg machine is sitting.

AshleyJ profile image
AshleyJ in reply toImpatient

Love the comment - I don't miss it one bit! Made me laugh :)

AshleyJ profile image
AshleyJ

I have also had one ovary removed as it had been squashed by a chocolate cyst. Did the doctor tell you why you needed it removed? Maybe speak to a specialist to see if an of the ovary can be saved.

As the others have said, your body is able to function with one, my cycles were instantly regular after the second surgery but as time has passed they are becoming less frequent - I think this is due to my Endo not having just one ovary.

My moods were horrific due to the medication I was on afterward the first surgery, but I thought it was a small price to pay to give my body a break from Endo. I didn't take HRT but definitely think this is an option worth discussing with your doctor as everyone is different.

And yes unfortunately since having one of my ovaries removed, I have had cysts come back.

Good luck for the next few weeks, will be thinking of you as it is an overwhelming time!

Britanny profile image
Britanny in reply toAshleyJ

How did you still have cysts come back if you had one of your ovaries removed

AshleyJ profile image
AshleyJ in reply toBritanny

I still have one ovary and still produce estrogen which fuels our disease and in my case causes cysts to reoccur.

Fibro-Warrior profile image
Fibro-Warrior in reply toAshleyJ

I had my left ovary removed six months ago. Lately, I've been having pains on the left side again and yesterday was very intense. I suspect a floating cyst. My question is, do you or does anyone know or have had happen to them, that they get a floating cyst on that same side once your ovary is removed? My left side just doesn't seem to be able to catch a break.

Redruby900 profile image
Redruby900 in reply toFibro-Warrior

Hi. I know its been a few months since your post but I was looking on line as this is my issue also. I had my right ovarie removed and I get excruciating pain with my cycle only on that side. Dr.s I have asked say its because the tube was left in. I dont get this and theyll do nothing for it. The periods have become completely disabling now. Id like to ask if you have received any answers yet on a possible cause?

Thanks and I wish you the best because I know how this feels.

Fibro-Warrior profile image
Fibro-Warrior in reply toRedruby900

Well, you can let you doctor know that you spoke to someone with the same issue and I had the fallopian tube on that side taken out about 10 years before that. Nothing so far, as for answers, but then again it's taken years to get many other medical answers for other issues that I have... so I'm not too surprised.

Thanks for touching base on the subject. It still bothers me and it's been almost 10 months. I hope you feel better, as well. -_-

Lily1986 profile image
Lily1986 in reply toRedruby900

Hey, I had my left ovary and both tubes removed 18 months and have pain every where but it is most certainly worse on the left side where the ovary was removed.

I tried convincing myself it was “healing pain” but apparently it’s nerve damage caused by endo. Maybe yours is the same?

Also now have cyst on remaining ovary. Xx

Murzilka190109 profile image
Murzilka190109 in reply toAshleyJ

Did you feel

Different emotionaly after the surgery?

AshleyJ profile image
AshleyJ in reply toMurzilka190109

Not really as I still had one ovary and my womb. I was in so much pain before it was removed I wanted it gone. I was scared about longer term impacts like reduced fertility but started researching IVF and adoption straight away which made me feel back in control.

I think we all would / do feel different after any surgery as it is a big thing to go through.

Hope you are ok, am thinking of you.

cupcakegirl profile image
cupcakegirl

I haven't personally but I know quite a few endo ladies who have, and they have still ovulated normally, been pregnant, etc - the remaining ovary should compensate.

In my mind, the biggest risk when you have endo is that if you have a choc cyst on one ovary, it's more likely you'll get one on the other later on - and if that eventually ends up needing to be removed, you're going to be in a very tough situation.

For this reason, it's important to save your ovary if there's any chance of doing so - if you're just seeing a gynae at your local hospital, I would strongly urge you to see a specialist in excision surgery as what they can do will be more advanced than a standard gynae surgeon.

If I had to lose one ovary, my only real concern would be the possibility of the other one being damaged later, rather than concern about the removed ovary itself,

Find out exactly what the situation is - I saw a gynae when I was 17 that I may need a full hysterectomy, before I'd even had a lap, so make sure you know exactly what's going on. If you're having a lap and you don't thoroughly trust them, you're well within your rights to refuse consent for removal of any organs - then if they needed to, they'd have to bring you round and discuss it with you before doing it.

sparkle22 profile image
sparkle22

Hey I don't know if I can be much help but I got my right ovary removed 7 weeks ago because of cysts. My cycle is still the exact same although a few people said that your period would only come every second month. However it hasn't stopped the endo pains so I was recommended to stay on my pill for 3 months instead of one to see if it would ease it a little. I was told I wouldn't need HRT because I'm only 22 and your other ovary basically kicks in and does the work of both? I definitely do feel a lot better and I'm a little less crabbit if I'm honest lol. Hope this helps x

Impatient profile image
Impatient in reply tosparkle22

I think people might have been confusing periods with ovulation. Periods happen each month, regardless of which ovary has released an egg, because the endo and the menstrual lining of the uterus are getting signals to shed and bleed anyway. So one ovary or two makes no difference to that event.

However regarding ovulation the releasing of eggs...it is usual that the ovaries take turns producing and hatching an egg each month. It isn't entirely acurate that this is how it happens, but on balance that is roughly what occurs when you have two ovaries operating normally.

There are times when each ovary hatches in the same month, and those of us ladies who always feel the painful pop of ovulation can attest to knowing which month it would be possible non-identical twins..or triplets!! with pops from both sides happening within a few hours of each other.

With only one ovary now in operation, if you were planning to try to conceive, then you should double the length of time for trying to get pregnant, same as you would if you had one blocked fallopian tube out of action.

Ovarian cysts can only grow from an ovary, so with one less of those, there is an immediate stop to ovarian cysts being a problem on the side with no ovary. Sadly they are usually removed due to cysts, and the other remaining ovary is just as likely to devlope its own little cysts instead.

A skilled surgeon can cut away a cyst from an ovary and free it up, but if you no longer need the darned thing then get it taken out. They are more trouble than they are worth if you do keep two troublesome ovaries when you could improve things alot by getting rid of one.

helsbels_m profile image
helsbels_m

Yes - mine was removed in April. I had a lap in Jan and was diagnosed with endo and my right ovary had attached itself to my kidney by an extremely large cyst. I had a further lap in April to clear up everything and they ended up cutting me open and removing the left ovary as I had two cysts on this one. I have been on HRT for the past three months and this has just finished, so I'm now waiting to see what happens!!!

H

JillianoB profile image
JillianoB

Hi don't know if this will help but ill give you my experience too! I had my right ovary and tube removed in 2008 and I didn't miss it either, my periods were the same etc. The problem I had is cysts started forming on my left ovary and after having them removed I have less than 10% of it remaining. I have been experiencing horrendous pain and awful periods and had a scan 2 weeks ago and I have another 4x5 cm cyst. I went to see the consultant today and he's going to try to remove the cyst and save what remains of my ovary but he isn't hopeful and a hysterectomy is looking likely. But after the removal of my right ovary I didn't need any HRT and was back at work after 4 weeks and I was feeling loads better up to about 9 months ago.

I hope all goes well for you and I hope at least part of your ovary can be saved. I'm 32 and didn't think I'd be having a hysterectomy at this age!

Jill :)

teacosey profile image
teacosey

Thanks every one for all your replies!!

Kessyeileen04 profile image
Kessyeileen04

I might be a bit different for this site but this is the closest group I've found. My one ovary was removed in 2005 (18) due to a dermoid cyst that had torsed (twisted) around the ovary and ligament. Supposedly, it had started when I was 15, I never had regular periods really and they never regulated even now- 8 years later. My partner and I had tried to get pregnant for almost 3 years and we're holding off infertility treatments until the healthcare reform in america works itself out. I haven't had any medical problems that I can attribute directly to losing an ovary, in general the only other formal diagnosis I've gotten was ADHD at 27 though I believe I may have had some depression in my life.

amarshall profile image
amarshall

I had my right ovary removed 3 years ago.

amarshall profile image
amarshall

Helped my symptoms after they removed it but still struggle with some pain. Struggle with my mood and my regularity. Mine was removed from severe endo. Second time having a lot removed.

kbronson29 profile image
kbronson29

What happen with your situation have you been getting your period regularly and have you been tested for fsh

brea_ profile image
brea_

Hope I'm not too late! I am 24 years old and I had my right ovary and fallopian tube removed 9 months ago because it was overcome with a teratoma tumour the size of a cantaloupe. I had absolutely no symptoms. I went to the doctor complaining of a muscle cramp-like pain in what I thought was my kidney. I was sent for an abdominal ultrasound and the doctor told me he didn't think they'd find anything. Even my mother told me I was wasting my time driving the 45 minutes to the appointment because she was convinced I was fine. In the month and a half between when it was found and when I had my surgery, it grew from the size of a golf ball to a cantaloupe. It was so large they could not tell exactly where it was growing from so I wasn't sure if I would lose any lady parts or not. When I woke up from the hour and a half long surgery, I had been cut from my belly button down to my pelvic bone, 28 staples and 5 days in the hospital. It was a long and rocky road but I had a great support system and I surprised myself by being so brave. It was the first major health issue I've ever had and I was very scared. To answer your questions- I just had one ovary removed. It has affected my cycles so far, they are MUCH heavier than they were before and cramps are worse. I find my mood is fine, I don't know if others would agree, haha. As far as drugs, I was on morphine until we realized I was allergic, then they were giving me 2 Tylenol 3's and 2 extra strength Advil. No HRT. During my hospital stay I was poked a lot, I think they were blood thinners, anti-blood-clot shots and anti-nausea shots. I have not had any issues with my other ovary so far but I should be making an appointment soon. Any other questions just message me :)

grace_cook profile image
grace_cook

When I was 1 1/2 years old I had to get one of my ovaries and tubes removed due to a teratoma tumor. I'm now in high school and got my period in 7th grade and as far as I know everything is completely normal and no new tumors have grown.

ap2014 profile image
ap2014

Yes, in April this year. The only difference I have noticed is that my cycle is messed up - but it takes the remaining ovary a while to settle down so I'm not concerned. I had my period 1.5 weeks after surgery (this was my normal cycle), then another 2 weeks later, then the last one 5 weeks after that. Nothing else feels different, though I guess the shooting, 'plinking' pain I feel on my left side about two weeks before my period can't be ovulation any more!

Lyric profile image
Lyric

Well I'm really, really late lol. But I also had my left ovary removed due to a tumor. However that was ten years ago but ever since I have suffered from heavy and prolonged cycles (anywhere from 7-14 day) Prior to the surgery my cycles came like clock work and lasted only 4 or 5 days max.

Now they're horrendous, then there is pain that tends to come midway through and leaves me debilitated for a day or two. Plus unwanted hair growth. I've gone back to my doctor and since moving to England several other doctors and there are no issues with my remaining ovary. But it has been recently recommended I go on birth control to help with the cycles and excesses hair. I am going to try it and see how it goes, will let you all know! x

mynameisPaige profile image
mynameisPaige

One of my ovaries died when I was five years old. Shrunk up like a raisin my parents told me. They told me I was supposed to have a period every other month but if I had it every month then that would be ok. Which in my case that did happen. (Lucky me >.>) when my ovary died I had an outrageous temper, i was blacking out, I couldn't eat anything without it tasting rotten or without throwing it up later, so when I got my surgery my mood swings toned way down and I could finally eat. Other than that o cant remember anything since I'm positive I was on painkillers and I was only 5. The one thing that has stuck with me is I have had morning sickness every single morning of my life. Sometimes I even throw up, and violently. My experience is probably different from people with cysts and whatnot though.

Lauren841 profile image
Lauren841

I had one ovary removed. It was because of a cyst a day I don't have any problems. It has been 4 months. I have noticed my period has been heavier, however I am 12 so it may be something normal. When I was out the only drug I took was oxycodon for the pain. It isn't very painful, you just are a little a achy for about 4 days. You may have small scars. For mine they went in on my lower stomach. I haven't been modify during my periods either. I hope this helps.

alibi profile image
alibi

Hi Everyone - if it helps to allay fears, here's my story. I had one ovary removed when I was 22 due to cyst which burst, and I am now 55. Over the years I have had normal periods, had 2 healthy children, and now going through a 'normal' menopause (if there is any such thing). Hope this brings you hope x

kwelle profile image
kwelle in reply toalibi

Gives me a lot of hope!

Lcc8 profile image
Lcc8 in reply toalibi

You had kids after the removal of your ovary? Trying to conceive

Amanda1989 profile image
Amanda1989

Teacosey,

I have had my right fallopian tube and ovary removed in 2012 due to an ectopic pregnancy and cysts, and found out that day I have endometriosis and cysts on my left side. I am having severe pain on my right side and no clue why when I don't have ft or ov on this side. I hope your pain went away.

Take care, Amanda

I HAD MY LEFT OVARY AND FALLOPIAN TUBE REMOVED LAST YEAR ALONG WITH 2 SOFTBALL SIZE CYST. IT DIDNT ALTER MY MF OR ANYTHING, BUT A YEAR LATER I AM 5 DAYS LATE AND WAS TAKEN TO THE ER LAST NIGHT WITH VERY SHARP PAINS IN MY RIGHT SIDE AND WAS TOLD I HAD A CYST ON MY RIGHT OVARY THAT NEEDED TO BE LOOKED AT TO FOLLOW UP WITH MY OB. SO NOW WAITING ON THAT.

2602 profile image
2602

I'm 13 years old and had my appendix and a cyst removed from my left ovary in August . Three months later... On Friday I learned that I need surgery again to remove a piece of my left ovary

roofieh profile image
roofieh

hi

i am 21 years old and had my right ovary removed 4 months back due to a 500 ml ovarian cyst

i had pcos

i plan to get married next year

ive been told my chances of having kids with one ovary are present

i want to know if sexual intercourse will be painful

i defineltely do feel my sexual drive has decreased but im not sure if its due to the roved ovary or just coz im generally very occupied with other things these days

Brooke_soccer profile image
Brooke_soccer

When I was 8 I had my left ovary removed due to a cyst the size of an egg. I'm 13 now and I cannot express how much it affects my menstrual cycle. I don't know if this is just me, but having one ovary makes my menstrual cramps almost unbearable. The surgery process was pretty quick because I was put to sleep, being only 8. I got to go home In a couple days but had to sleep in a cot next to the couch. I ate basically crackers and drank Sprite during the healing process. I still have the scars but they're a lot smaller now. I hope this helps. (Btw I just realized this was from 3 years ago! Sorry I just thought I'd add my story.)

Unknownone profile image
Unknownone

I'm 27 have a cancer gene causes tumors all over my body. Throat chest bladder colon stomach and ovaries. That's sucks but doesn't scary me. Non of my tumors been cancer due to god. Problem is my 6 time having surgery on my ovaries so much scar tissue open me like a c section and all around my stomach. Now there is a tumor on my left they now have to remove everything on that side. Last time didn't see the other tumors till they open me up. Cancer tumors don't scary me what does is sex drive I have 2 kids but I want to please my man. Thinking of keeping it so we still have it do you lose all your sex drive completely?

TealSurvivor profile image
TealSurvivor

I had one ovary and tube removed after the doctors found a cyst during a pregnancy ultrasound. They did surgery at 17 weeks pregnant & found the cyst to be cancerous, causing the entire removal of the right ovary and tube. After I had the baby I had my left tube tied cut and burned. Now my periods are extremely heavy and painful.

smf_1007 profile image
smf_1007

I'm currently 27 years old and had my right ovary removed @ the age of 23 due to my cyst being 11cm & at risk of torsion. I read on other posts here about their doctor removing their fallopian tube as well with their ovary, but my doctor left mine; which I found odd.I could of had my own room at the ER for how often I was there prior to surgery because of horrible pain. I always got benign cysts on my left ovary, which made the doctors assume I never had anything until it got to 11cm.

I've kept track of my period on an app since before I had surgery and looking back; the cramps are worse and my period is more heavier. Before surgery I would have a 3-3 1/2 week gap in between periods and now its 2-2 1/2 weeks. I get intense pain sometimes during my cycle and my uterus feels so huge like I have a tampon stuck up there. I've gone to the ER the first time I experienced that (recently) and the doctor even physically examined me to see if I had one stuck, but said my uterus was "swollen". Not sure if that's normal.

And I've noticed my personality change a lot. I'm way more emotional. Very quick to get angry or sad. And when I get angry it's really hard to calm myself down at times.

Can anyone who has similar problems to mine please leave a comment.

I'd truly appreciate it.

twiztidbeauty89 profile image
twiztidbeauty89 in reply tosmf_1007

have you gotten any ansers?

smf_1007 profile image
smf_1007 in reply totwiztidbeauty89

No

Pop2019 profile image
Pop2019 in reply tosmf_1007

Hi I had my ovary and tube removed due to a torsioned dermoid cyst (can't remember what side) when I was 24 I'm now nearly 30 & it's changed my life so much. I have the worst periods ever lasting upto 9 days, but I have one every month. a few weeks after having the opp my face back & chest broke out in the worst spots ever, I got told it was my hormones readjusting nearly 6 years later I'm still suffering with acne After having clear skin all my life ☹️ My moods are awful, I hardly have any sex drive, I'm exhausted most of the time, I feel like I'm trapped inside a old lady's body, I've already got 2 children but got reassured that I could have more children been trying for 2 years with no luck ☹️ My hair has been noticeably thinning for around 6 months too 😢 The gynaecologist told me I would not go through the menopause any earlier than I would with two ovarys but I think I will. Women don't produce eggs everyday like a man produces sperm, so surely if u have two baskets of eggs and one gets taken away, the one that's left will run out faster (or am I missing something) anyway overall having my ovary removed has had a massive effect on me.

KMW2204 profile image
KMW2204

I had my left ovary and both tubes removed in April. This was after lots of pain and discomfort over a period of a few weeks, discovering I had a large cyst growing! When it was removed it measured 30cm and was bigger than a watermelon! I now know had I not gone privately and waited for the nhs appointment it would have been disastrous for me. I had a lot of gastric pain afterwards for a couple of weeks, but returned to work pretty quickly and have resumed a pretty normal lifestyle again, although I’ve not taken up my yoga practice again yet! I’m yet to had a period, my last being the day after my op on the 18/04/19....so I’m interested to see how that goes.

Milly2408 profile image
Milly2408

I had my right ovary removed due to a tumour when I was 14.

I started my periods at 16 and they were every month and have been ever since. They've always been regular and I've had blood tests which say I ovulate every month.

I've been told that my body compensates with the one ovary and that it has taken over from the other.

We've been TTC for a while but are told it won't harm our chances.

Hope that helps a little :)

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