Endo pains/burning pains

[Sweetyassi]

Hi everyone,

I woke up 3am last night in agony. I felt like my bowels, bladder and ovaries were on fire. I wanted to claw my insides out. I vomitted and then I felt like I was burning up and I fainted. Now my insides feel very sore. I don't know what happened but has that happened to anyone else? I felt like someone put a blow torch inside me. Don't know how much longer I can take these pains. I'm feeling so exhausted now but I can't fall asleep, my lower back is throbbing.

Sweety.

[mihaelad]

Hey there, where are you in the month in relation to your period? Is it right at the end of your period? I have the same type of pain you are describing and always starts right after my period ends... And lasts for 4-5 days..

[Sweetyassi in reply to mihaelad]

Hi,

I don't have any periods as I had a hysterectomy done a few years ago. I don't know what's causing my burning pains, but it's absolutely horrible.

Sweety

[mihaelad in reply to Sweetyassi]

I am really sorry to hear you're in so much pain do you have your ovaries left?

[Sweetyassi in reply to mihaelad]

Yes I still have both of my ovaries but will find out in November if the surgeon will remove both of them to slow down the return of endo coming back so quickly for me.

Sweety.

[Barran]

I have had endo all my life. I faint at least 2× a mth. The pain you described is almost what I experience. The pain I experienced every mth is equivalent to labour pains. Yes, by some miracle I have kids. I feel so drained and exhausted I no longer feel the need to explain myself to anyone. I have had 4 lasering of the walls of the uterus within like a 15 yrs span. It helped a little.

Mila

[Sweetyassi in reply to Barran]

I'm grateful that I have children too, I hate fainting it takes me a day or two to get my strength back. I've had about 5 operations so far to remove endo, and each time the endo comes back quickly for me. I'm due to have another operation to remove more endo and to remove my ovaries.

Sweety.

[Karen19]

I’m having that same burning pain right now and I just want to pull my guts out . I’ve had 3 surgeries . My appendix ,uterus and ovaries were removed due to damage over the course of the 3 . I feel like I need another surgery but I’m scared and don’t want to lose anymore “parts” .I can not even imagine how life would be if my bladder or bowels were damaged . It’s keeping me from seeing my Dr right now but I’m hurting pretty bad

[Sweetyassi in reply to Karen19]

Hi Karen19,

Sorry to hear that your suffering. I completely understand how you feel. Are you taking any painkillers?

I recently had my 7th operation in August and had everything removed. As my endo was bad and had a lot of adhesions. I had a huge complication once I woke up in recovery. During surgery I developed compartment syndrome in my right leg. I was in agony. I had to have 4 operations on my leg and instead of staying 3 days at the hospital I ended up staying 2 weeks and now I'm on crutches. I'm going to find out what went wrong during my surgery because this shouldn't have happened. I have decided now that no matter how much pain I'm in I'm not going to have anymore operations. I think I'm now going through menopause. I can't even enjoy my recovery, have to exercise my leg every hour on the hour, go to physiotherapy and hydrotherapy. I'm so stressed out.

Sweety.