I'm 45, no kids, was on the pill from 24 to 35, started feeling mild endo symptoms late 30's (didn't know it was endo back then), periods started getting heavier at 40, had a uterine polyp removed at 41 (benign), and via annual TVU they found 5cm endometrioma on left ovary at 42. Dr decided on expectant management and it's been stable for the last 3 yrs. In April 2016 another 5cm endometrioma was found on right ovary. On Aug 1st 2016 it had grown to 8x8x10cm. Dr scheduled me for laparoscopic surgery for Nov to have have them both removed. I also have several small fibroids.
As a precaution, he did CA125 test along with C19 and CEA.
CA125 came back at 198, so he's promptly referred me for screening to an oncologist as he feels that since I got endo later in life and my CA125 result is 198 he doesn't want surprises in surgery. C19 and CEA were normal.
I've had 4 TVU in the last 12 mths to monitor the situation, all were done by a very reliable Gynecologist who does ultrasounds one day a week, and there was never any doubt about any suspicious masses. I don't have any OC symptoms.
I am waiting to see the oncologist, but am 100% freaked out by that. I have read a lot about CA125 and know that it cannot be very reliable for cancer screening ... another well known expert GYN & surgeon saw my results and he considers them normal for endo & endometriomas.
Any similar experiences and insights are very much appreciated. I am flipping out a little ...lol....I know they'll redo CA125 and HE4 and TVU, but the waiting and anticipation are messing with my head.
All the best to all of you!