Abdominal wall endo/scar endo: Anyone else... - Endometriosis UK

Endometriosis UK

70,118 members51,936 posts

Abdominal wall endo/scar endo

Ashy11 profile image
3 Replies

Anyone else have this? Would like to speak to someone going through the same things as me and to hear your experience and treatment?

Thanks

Written by
Ashy11 profile image
Ashy11
To view profiles and participate in discussions please or .
3 Replies
Raeking profile image
Raeking

Hi,

I have endometrioma on my c scar. In the last 6 years I have had 2 C sections (emergency). There was a hard area at one end where I had a drain from the last surgery. I had a merina coil fitted after the birth but over the years this lump grew. I thought it was an abscess and dr put on various antibiotics. Eventually had an ultrasound that was confirmed that it was endometrial mass. It flares up and it's like a hot poker twisting in the scar. Gyno dr is getting me booked in for an MRI and surgery to remove. Xx

Ashy11 profile image
Ashy11 in reply to Raeking

Can I ask where about you Live? Im struggling to find a doctor who knows about this. General surgeon that performed my surgery has discharged me and im under a gyno but he is really old and has dismissed that this hs been caused by the c section even though i have never had a history of endo before? He has booked me in for an internal scan and mentioned a lap but I think this is going to be pointless as A that is not where the endo is and B it doesnt always show up on ultrasound anyway?! Frustrating x

Raeking profile image
Raeking in reply to Ashy11

I'm based in Kent, SEast. I was very lucky with my scan and Drs. Ask for a second opinion. It's important you get the right treatment. The Gyno de said it has to come out or it will continue to grow. This is with a Merina coil controlling my cycle. God knows what would happen if I had normal periods xx

You may also like...

Abdominal wall endo surgery advice!

Hi everyone, I have an endo mass just above my c scar which causes a lot of pain and problems, and...

Endometrioma in abdominal wall

consultant. Has anyone else had this before and knows what the next step will be? Thanks xx

4th Lap no Active Endo, but bowel stuck to abdominal wall, anyone else had this?

who said the same they don't know if its old endo or another issue that caused it to be like this,...

Anyone's uterus adhered to abdominal wall?

Assuming its my uterus for now, does anyone else have that problem? Have you been told that after a...

Abdominal wall Endometriosis...anyone one else have this?

the same symptoms, heavy bleeding and agony for 15 days a month. I have a mirena but i still have...