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Endometriosis UK
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Please someone help me!!!

Can anyone on here tell me if the decapeptyl injections stop the mirena coil working.... I stupidly went to the chemist for the morning after pill and they said it shouldn't make a difference and the coil should still work so refused to give it to me but I am in such a bad state I wondered if anyone on here could help... X

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Why did you have both Nicola? a mirena and injections?

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Had the mirena fitted because of endometriosis and it didn't help so they started me on a course of decapeptyl as well.. I am really concerned so was wondering if anyone could help. Thank you

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Having a Mirena fitted suppresses your ovaries so no periods no pain or that's how it supposed to work! I,m not sure what the injection will do if you still have the Mirena in. if your ovaries are "asleep" as they should be with a Mirena then your pain must be something else. What are you experiencing hun? explain your pain and where it is..

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Rhe mirena hasn't suppressed the effects of my endometriosis. I was still have irregular bleeding and pain. The mirena coil worked for a bit but didn't last. They decapeptyl has been given to me to help with the symptoms as I can't have another operation as its not been enough time since my last one.

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I live in Greater Manchester and so worked at a large hospital in the Womens Unit, there are some top class gynae and uro -gyna surgeons there with numerous out patient clinics covering everything from early preganancy to post menopause. Have you had the positioning of the Mirena checked? Why is it oyu feel you need more surgery hun??

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As the endemetriosis has grown back I think she said stage 2-3. Had it burnt away last year but it's back. Had an MRI scan and it was apparent in this. X

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Hi Nicola - where did you have endo found at your lap? Unfortunately burning will do nothing for it unless it is very minor. This treats just the surface and it will almost always come back as it was never removed in the first place. Where in the UK are you?

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I live in Essex near Colchester. They weren't specific in where it was found just said it was all over.

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First of all in response to an earlier reply the mirena does NOT suppress your ovaries. It has a very low dose of progesterone and acts locally in the uterus. Very little reaches the circulation and ovulation occurs in an estimated 50% of cycles. It acts as a contraceptive by thickening the mucus plug in your cervix to prevent sperm getting through and by thinning the endometrium should a fertilised egg get through to prevent implantation. The thinning of the endometrium has the effect of lessening periods and therefore aims to reduce period pain. Some women do report reduction in endo pain but this is probably in mild cases.

However, the injections (GnRH agonists) do suppress ovarian function by shutting off the hormones produced by the pituitary gland in the brain that normally cause the ovarian follicles to develop. Whilst these are not used as contraceptives as such there should be very little chance of a pregnancy occurring in these circumstances.

You have said that the mirena hasn't helped you and it is unlikely to when you are in pain every day. The injections don't seem to have helped either and you seem to be in the grip of the usual inadequate treatment in general gynaecology. Burning or thermal ablation only treats the mildest of endo. For anything beyond that it just burns the surface leaving the endo beneath to carry on growing. The fact that you have had several laps proves that the endo isn't being treated properly and you are being given these awful injections at such an early age in between surgeries for the very reason that the surgeries are clearly doing nothing. There is every chance that you have endo in places that the gynaecologist hasn't even looked.

You need more thorough treatment and I suggest you request a referral to a specialist BSGE accredited endo centre. Have a look at my post on how to find one.

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Thank you so much for your guidance and help with this. You have made me feel a lot better about the situation. I am at breaking point now with the whole situation. Xx

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Come back if you have any problems getting a referral. You have a centre in your town.

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I have a mirena coil and I have endometriosis. The coil has helped with the bleeding but has done nothing at all for the pain. I've had it fitted 8 years xx

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FWIW I was started on decapeptyl shortly after having a mirena fitted early this year because the mirena wasn't working quickly enough to stop my periods and give me pain relief. It's not unheard of.

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