Really need some advice so confused... - Endometriosis UK

Endometriosis UK

72,928 members53,283 posts

Really need some advice so confused...

7 Replies

Hi my daughter has just had her second lap in 2 years she is 18.After her first lap they found stage one endo & she had it lasered. Since then she has still been in pain everyday which has got worse each year,she has chronic fatigue, & some of the other symptoms associated with endo..They have just told her that they haven't found any endo& are going to refer her to a pain clinic...We are so confused she's in tears..My questions are if endo has gone can it still cause pain etc?...& is there a possibility that a endo specialist can miss the endo? & what else could it be?..Sorry for so many questions just feeling so fustrated right now...n helpless for my child.

Read more about...
7 Replies
JeanOsborne profile image
JeanOsborne

Hi yes it is possible as no one is perfect. It could also be various other things causing the pain. It could be adenomyosis,pelvic floor dysfunction nerve damage caused by the endo to name but a few.

It wouldn't hurt to get a second opinion.

I'm sorry your daughter is still suffering.

in reply toJeanOsborne

Thank you for your reply..We might just do that...wishing you all the best

kagz profile image
kagz

As far as I no scar tissue can cause pain were they have removed it,has she had another lap to say its gone?

in reply tokagz

This is her 2nd lap first one they lasered it..Now they've said they can't find anything

kagz profile image
kagz in reply tokagz

As jean said it cud be them other things, but ye I wud get a second opinion, if she is still in pain do it,u just have to fight for everthing now or they will just palm u off with pain killers which just isnt the answer,expecially if its codeine, as u soon become addicted and immune to them

in reply tokagz

Thank you for replying...take care

Hi Lindle thanks for replying...She is on Marvelon the combined pill at the moment.She has pain everyday in different places lower abdomen,in the sides of her stomach,her diaphragm, lower back,legs....They found endo on her pouch of Douglas previously..yes he is a endo specialist based at the endo centre at Birmingham women's hospital

Not what you're looking for?

You may also like...

I need advice im so confused

So 4 years ago i was diagnosed with endo cia a diagnostic laproscopy. This year i was re-refferred...

Feeling so confused need some advice please x

Hi ladies I really need your help. I've been suffering with endo for many years. I've had a...
Tracysam profile image

Please help Need advice after lap

Hello everybody Really need and would appreciate some advice about the treatment and information I...
Rosie1989 profile image

Laparoscopy yesterday - nothing found and feeling hopeless! Advice please

Hi ladies, I hope you are all well. So I had my laparoscopy done yesterday. I am 27 and have been...
Irishgal27 profile image

I need some advice

Hi I am due to have a lap and hopefully remove some endo at the same time. I have a few questions...
Tilc profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.