Really need some advice so confused... - Endometriosis UK

Endometriosis UK

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Really need some advice so confused...

7 Replies

Hi my daughter has just had her second lap in 2 years she is 18.After her first lap they found stage one endo & she had it lasered. Since then she has still been in pain everyday which has got worse each year,she has chronic fatigue, & some of the other symptoms associated with endo..They have just told her that they haven't found any endo& are going to refer her to a pain clinic...We are so confused she's in tears..My questions are if endo has gone can it still cause pain etc?...& is there a possibility that a endo specialist can miss the endo? & what else could it be?..Sorry for so many questions just feeling so fustrated right now...n helpless for my child.

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7 Replies
JeanOsborne profile image
JeanOsborne

Hi yes it is possible as no one is perfect. It could also be various other things causing the pain. It could be adenomyosis,pelvic floor dysfunction nerve damage caused by the endo to name but a few.

It wouldn't hurt to get a second opinion.

I'm sorry your daughter is still suffering.

in reply to JeanOsborne

Thank you for your reply..We might just do that...wishing you all the best

kagz profile image
kagz

As far as I no scar tissue can cause pain were they have removed it,has she had another lap to say its gone?

in reply to kagz

This is her 2nd lap first one they lasered it..Now they've said they can't find anything

kagz profile image
kagz in reply to kagz

As jean said it cud be them other things, but ye I wud get a second opinion, if she is still in pain do it,u just have to fight for everthing now or they will just palm u off with pain killers which just isnt the answer,expecially if its codeine, as u soon become addicted and immune to them

in reply to kagz

Thank you for replying...take care

Hi Lindle thanks for replying...She is on Marvelon the combined pill at the moment.She has pain everyday in different places lower abdomen,in the sides of her stomach,her diaphragm, lower back,legs....They found endo on her pouch of Douglas previously..yes he is a endo specialist based at the endo centre at Birmingham women's hospital

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