Feeling confused : Hi I am new on here, I... - Endometriosis UK

Endometriosis UK

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Feeling confused

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Hi I am new on here, I had an appointment on Thursday and the said I had endometriosis. They explained the options to me but I really don't like the thought of having the op or the hormone treatment. I want to start a family too. I am feeling very confused. I am worried that I won't be able to get pregnant.

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AnnaB1979 profile image
AnnaB1979

Hi there. Bit of background which may help you - I have suffered from endo for as long as I can remember and am desperate to have kids soon. I was diagnosed early this year and told I could have a laparoscopy to get rid of most or all of it and then go on the pill or try the pill and see I get on with no confirmation that would take full care of existing deep endo that had been there for many years. I hate operations, I am 35 and have never taken the pill because I hate the idea of taking fake hormones and the whole thing freaked me out. But I went away to think about living with that much pain for the rest of my fertile years with a brief relief during pregnancy and I couldn't stand that thought. I had the lap in April and have been on the pill since to control any recurrence. I don't regret it for a second and because the pill doesn't hang around in your system for long, I'm doing one more pack then we're trying to concieve immediately as directed by our consultant. She has said we now have a high chance of conceiving. The lap and pill doesn't fix everything and it can come back but the thought of doing nothing made miserable. Good luck to you whatever you decide to do. X

in reply to AnnaB1979

Thanks for your reply. It's all very confusing. They said to bring forward my plans to get pregnant. Just worried that it won't happen and will have to go down the line of options x good luck to you too fingers crossed for you regarding baby plans xx

AnnaB1979 profile image
AnnaB1979 in reply to

I was also told we could try to conceive and if it didn't happen in 6mths, they'd do a diagnostic lap to see how extensive the endo was (and to properly diagnose it) but the pain was so bad, I was advised to get my uterus as healthy as Possible first hence the op and pill before we tried to avoid to "try and see"option. Possibly to do with my age too. Xx

in reply to AnnaB1979

I just turned 34 so very similar. It's just a shock and a lot to take in isn't it xx fingers crossed forit to work for us x

Hi, I just wanted to say that I had Zolodex injections at the age of 26 for over two years to treat Breast cancer. A few years after the treatment I was informed that they were 99% sure I would not be able to have children because of my treatment.

Please take time to think about it and discuss with your doctors to se if you could have the same outcome.

EndoHubby profile image
EndoHubby

HI Guys

My wife and I are still figuring out this out. One of the GYN informed us that she might have adenomysis after sudden horrific period pains in the last 2 months. She has been feeling heaviness in the stomach ever since then.. While we still arent sure if its adenomyosis /endo or just an infection from the looks of the symptoms we think it is definately not an infection. As you know this condition is difficult to diagnose.

I have been seeing my wife in pain for 1 month now and i am totally broken by it. All i can tell you is - There is no quality of life in living this way. I would rather adopt or go for surrogacy than go through this ordeal everyday. If there is something that can alleviate your pain it can be the right way to go

Just my thoughts..hope you find your path soon

in reply to EndoHubby

Its horrible :-(

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