Endometriosis UK
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Confused

Hi ladies. It’s been a while since I last posted however I will keep it sort and I need as many replies as possible even if it isn’t seen as ‘useful’

If you look back as my past posts, I had been to a gynaecologist who told me to get either the coil or the injection and come off the POP pill. I got told by a doctor not to get the injection as I am not 18 and it increases the risk of bone cancer. I then am absolutely petrified of the thought of getting the coil.

I am confused and worried as I have a check up appointment at the gynaecology with the same doctor and I feel like with me not trying either options she will just dismiss me completely. I am experiencing the exact same symptoms: cramps, collapsing, migraine, excessive bleeding, back pain and leg pain. I need opinions on what I exactly say to the gynaecologist about NOT trying either options. I feel like I am too young (17) to be trying the coil. I’ve been so so emotional about this whole experience.

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Its so overwhelming isn’t it?! Especially if you are reading lots of different opinions of people on the web! Like me! Try and stick with the science when deciding for yourself as often people post only when they are having a bad time so you will find lots of complaining but not the happy people who had a good outcome from a treatment! The happy ones are out doing stuff not on the web being sad! So if I were you I would try the mirena coil. I found a site the other day where women were all raving about how great it had been for them and were commenting how sad it was that people were being scared off the coil by reading stuff on the web. The mirena coil will make you have light if not no periods and the progesterone in it acts locally in the pelvic area so you mostly don’t get side effects at all. It is being used in young women and it is safe. You will probably love it. It is so easy and straight forward. That would be the first step to take. Maybe google “ I love mirena” rather than a negative comment! Also the Jeanhailesfoundation has fantastic scientific information. I hope that helps! I have had a more a for 5 years and have no periods and no problems with it at all. I have 2 friends with it and my 23 year old niece and they have had no problems at all. Good luck!!! But check out jeanhailesfoundation . Xo

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I love your positivity, All these sad comments make me feel hopeless because Im 22. I have struggle in my mind and worried about my future 😑

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I’m sorry. It will be ok. I’m sorry you feel hopeless. It isn’t hopeless though. There is lots of hope because treatments are getting better all the time. The trick is finding a caring medical team who listen and try. Maybe you should talk to your Gp ( a nice doctor who listens I hope!) and ask about depression? People who are depressed often feel hopeless and like their is no future. There really is hope . Endometriosis is becoming much more recognised and lots of people are fighting for a better treatment. Tell your Gp how sad you feel. Good luck.

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I really can't imagine living with endo till the end of life and how it affect fertility. On friday I have consultation and ultrasound to see whats going on ( I was in progesteron sythetic for 3 months) and I will talk about it. Thank you very much.

Sending hugs.

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The sexual health clinic won’t fit the coil for me as it’s not for contraceptive reasons. I feel like I would need to be under anaesthetic when getting it fitted as I am queezy and faint. I’m so scared if I was to get it xx

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They are annoying! Can’t you pretend it’s for contraception??? Can’t they pretend!! Don’t they want to help you???!!! 👿😢👹 Here is Sydney there is a private clinic and you pay and have light sedation and they put it in. Maybe there is something similar in the uk? But it can be uncomfortable if you are young and haven’t given birth vaginally. I had mine put in while I had a laparoscopy. Surely your Dr can sort it out for you? Discuss the options available.

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Thank you so much for your help xx

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I’m 19 and have been on contraceptions of various names since I was 15, all I can say is do what you want to do, the coil scares me if I’m being honest and I refuse to be bullied by gynaecologists into having it, you just have to do what you want to do, do your own research, decide what is more compatible with your body yourself, in my experience every gynaecologist has their own preference of contraception, but it doesn’t matter what they think works, as long as it actually works for you, and you can request to see another gynaecologist trust me, I’ve been there and done that, haven’t got time for dismissive gynaecologists! But they will put off operating on you for as long as possible, it’s an age thing, which sucks, plausible deniability seems to be a gynaecologists best friend especially when it comes to potential endo in young women 😩 x

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Thank you so much for your reply xxx

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I have the coil, and whilst there is a little discomfort at first, it has worked miracles for me! After a brief two month light bleeding, I now don’t bleed at all. I still have some mild period pain when I should have my period, but otherwise I’m so glad I took that option. My endo symptoms have disappeared or are at tolerable level that they no longer interefere in my life and what I want to do! My gynaecologist put it in when I had a routine check up, so I had no time to panic beforehand.

Best of luck for whatever you decide x

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I would say the same, as I’ve heard loads of very positive comments re the coil from friends etc and majority of people love it. Most of the comments you see on this site are from people who’ve had adverse reactions and feel everyone will have the same.

My personal experience is our body’s are different and I’m not tolerating medications now that I had no problem with in my early 20’s. I had the coil 2 years ago (aged 38) and symptom wise it reduced my pain and stoped my bleeding . My other symptoms of endo I managed with as I was in less pain. The reason I had it removed was very low mood but I think I was already very low and the medications just exacerbated it, as I didn’t really improve when it was removed.

I was terrified of having something permanently ‘inside’ me!! However I didn’t feel it at all once it was in. Only thing to push for is get an experienced gynae person to put it in as if you haven’t had kiddies its all ‘a bit tight’ down there. They used to say it was people who have had kids but because your having it for endo it’s different.

Just remember it can easily be taken out at any stage! But give it 3 months +. You’ve got nothing to lose and I’ve found the more I think about things the worse the idea becomes!

Good Luck xx

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Thank you ever so much! Xxx

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