Feeling confused: Hi everyone I never... - Endometriosis UK

Endometriosis UK

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Feeling confused

DNA123 profile image
7 Replies

Hi everyone I never usually write on things like this but I'm a bit worried and a bit lost so I hope someone has gone through what I'm going through to give me some advice. I had an operative laprocopy (won't bother boring you with the history of how long it took to get diagnosed etc) about 5 weeks ago after the first two weeks I felt alright they found cysts and endo a lot around my bowel and ovaries. About 3 weeks ago I started work again I'm in the military so as you can imagine it can be hard work my first week was half days then and I had like cramping pain in my side would finish work and have painkillers and have a stupidly long bath to help. The second week was full day's first full day of 4 months of pain (this time round) so first day I finish work and ended up in agony in my side the second day they put me on an 11 hour shift and I could barely walk I was in so much pain by Wednesday I was throwing up my side was in so much pain I saw the consultatant who said its inflamed but he doesn't want to see me until December to see if the cerezette is working then I pay have to have surgery. But I can't live on tramadol and being sick with chills and be in pain missing work forever I just want to be normal again. I'm newly diagnosed before they were convinced I had kidney stones for years. Please any words of wisdom would be greatly appreciated

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DNA123
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7 Replies

Hi I'm sorry you're going through this. You will find lots of support in here but what concerns me about your post is you say you are being sick and having chills? This makes me think you could have a post op infection of some sort. Have you checked your temperature yourself? I don't feel it is normal to get much worse after a laparoscopy. I would try and get checked out again xxx

DNA123 profile image
DNA123 in reply to

Thank you for replying I have been to emergency gyni today they said its my bodies reaction to pain and that they don't think my cerezette is working so it's not stopping the endo

I would attend A&E to ensure you don't have an infection (chills are often a sign); as for being the military - I'm a soldier's wife and I know the heavy physical work you have to do. There's only one other wife who is disabled and she doesn't have endo. If you go to A&E and there's an urgency, you may get any surgery done there and I'm confused as to why you would have to pay anyway. If abroad, the army should either send you back to the UK or pay for the local hospitals to provide the care. I would speak to your welfare officer and/or your 2IC and see if they can assist.

Booboo08 profile image
Booboo08

I would go a and e definitely incase it's serious.

Also look at your diet and Google endo diet.

Diary, lactose and wheat can cause pain with endo. I know as I found out when I called an ambulance two weeks ago as I thought something had burst inside me I was in that much pain.

I really feel for you xxxx

DNA123 profile image
DNA123 in reply to Booboo08

Thank you for your advice like I said above I did go to emergency gyni it's not an infection so that's positive.

I'm so sorry to hear that you were in so much pain. I've looked at the endo diet I cut out a lot already it's hard to cut out food as in the military you don't really have choice on what food you eat.

I hope your feeling better now xx

DNA123 profile image
DNA123

Hi there I had my surgery in a private hospital in Portsmouth by a specialist. My pain is on my left side. The doctor I saw today was general gynaecology they said I need chronic pain management or something that was about it. I don't know if I should keep pushing it or if I'm going crazy I was expecting to feel a lot better after surgery not be in pain again. X

Deb1511 profile image
Deb1511

Shame I feel so sorry for you, you sound like you going through what I've been going through for nearly 4 weeks this time. I too take tramadol, paracetomal, diclofenic and diazepam and was told Monday that if this tablet combination does not work my doctor said they will admit me to gynaecology for pain and would get looked at quicker. Good luck Hun don't suffer qlone we all here to listen and offer support and if need be phone your doctor everyday the will give you an appointment xxxx

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