Feeling deflated

After finally receiving my lap surgery 12 weeks ago and what I thought would be a new beginning for me I've been left feeling worse than before. I have been told I have many thick adhesions between my womb, bowel and bladder and for safety reasons they cannot be removed incase of further damage. Surgeon also tried to insert mirena and was unable to. They also did the dye test on my tubes and it came back that only one is slightly "unblocked" and chances of me conceiving are very little. I wasn't hoping to be 100% better but I expected to get a little improvement but now my consultant has said that I probably won't come off my morphine tablets which is what I wanted. Sorry for seeming all doom and gloom I'm just disappointed.

8 Replies

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  • Do you know why your surgeon couldn't insert the Mirena? X

  • They said my cervix is tilted and pulled back because of the adhesions said it's strange though as even with this they can usually get it in. I knew before the endo that my cervix was tilted back due to difficulty having smear tests so this explains it all now xxx

  • Were you seen at a BSGE as I would have expected a BSGE surgeon to be able to excise the adhesions. If you weren't seen at a BSGE clinic, try to get a referral because chances are you will vet much better results with a BSGE surgeon. It's so disheartening to find out the surgery really didn't do anything for you. I hope you can get a referral and get the care you need.

  • Thanks you so much for the advice I didn't know anything about this il go back and get a referral :) xxx

  • Hi - the NHS requires that you are seen in a BSGE centre with the stage/type of endo you have. This surgeon should have referred you on but you can get a referral from your GP. Have a look at my post on the referral pathway and on how to find a centre. You might also find the posts on rectovagainal endo and endo on the uterosacral ligaments useful as this is what you are likely to have. The reason for the problems with the mirena is that your uterus will be pulled back at the cervix with the adhesions attaching it to your bowel so it will be unable to expand properly and will be at the wrong angle. Please try not to be disheartened as you have been treated incorrectly by effectively being abandoned. The specialist BSGE accredited centres are especially for cases like yours. x

  • Thank you so much!! I'm going to go back and see the GP and say I'd like be referred my GP is brilliant with me and it helps that I'm a pharmacist as he seems to take me more seriously that way!! Thank you xxxx

  • Come back if you have problems getting a referral.x

  • They said my cervix is tilted and pulled back because of the adhesions said it's strange though as even with this they can usually get it in. I knew before the endo that my cervix was tilted back due to difficulty having smear tests so this explains it all now xxx

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