Feeling deflated after my mri result

[Chloelouise92]

So I’m feeling a bit deflated after my mri result. So the gynae secretary read me the letter written by my consultant which said that scarring was seen on the uterosacral ligaments, which is where endo was removed from previously. But no other indication of endo (which she said was good news) however I feel a bit deflated because I know all this pain must be caused by something and I’m convinced it’s my Endo that has come back.

Has anybody else had a similar experience but then gone on to have a laparoscopy and Endo has been found?

[Lily1986]

Hey, I’m sorry you’ve had this experience.

MRI’s are so hit and miss, it largely depends on the radiographer reporting and whether they know how to spot Endo on the scans.

Honestly I don’t have any faith in MRI scans after all mine missed extremely severe and complex Endo for 15 years. By time I was diagnosed through lap it was too late I was infertile and with permanent and extensive damage.

Even now with a diagnosis many scans still miss the disease and even when they do pick it up it’s never anywhere near the full extent of what is seen during surgery.

I’d recommend doing a subject access request to your hospital to obtain the scan images for your own records. Once you have these you will have them readily available should you wish to seek a second opinion.

Best wishes to you ❤️

[Chloelouise92 in reply to Lily1986]

Thank you so much for your reply and I’m so sorry to hear about your experience.

Half the battle is trying to get somebody to take you seriously in the first place. I was diagnosed by a specialist that initially told me after an internal ultrasound I didn’t have endo…she then asked what I wanted so I said a laparoscopy as this is the only definitive way of knowing and I kid you not she rolled her eyes at me.

I feel worse now than I did before I was initially diagnosed. I just need to know I’m not going mad and there is a reason for all my pain and all my symptoms.

Thank you for listening and taking your time to reply to me ❤️