Hi all. I have just joined. I am 21 and have been diagnosed for 2 years.

I've lost two jobs because of my endo and after the most recent one I have become very unstable. I have been diagnosed with sever depression and anxiety and have been signed off work as I'm in too much pain and too mentally unstable to work.

I've tred hobbies but I am unable to focus on anything due to the pain. I'm on the waiting list for my 2nd laproscopy but I am just so scared it won't work. I don't want to be like this forever I just want to be a normal 21 year old. I can't drink due to my painkillers. I can't go out as standing up is to difficult and I am now too scared to leave my home.

Any tips on how to get through this sad worthless existence?

5 Replies

  • im really sorry to here this endo is crap!! Have you asked to c a pain specialist, I was having a really hard time got referred and been put on new painkillers and they r making things easy at times!! I started sewing as well as I can sit at the table on my sewing machine it takes my mind of it for a short time! Waiting on my 4th surgery at 29 it's awful!! I really hope you get sorted soon!!

    Sending hugs xx

  • Thank you so much. I hope you get sorted too. Ive got an appointment for a pain management clinic next month. There's just so much waiting. And I feel so useless because I can't do anything! I might have a look into the sewing. I've been colouring but I'm starting to lose interest. I just struggle to concentrate so I usually start doing something and then stop after 5 mins x sending hugs. Thank you for taking the time to reply so nice to talk to someone that understands xx

  • I'm so sorry to hear that you're going through such a tough time. Are you getting support for your depression/anxiety? Because in my experience (of anxiety, admittedly, rather than depression), they are the demons that want to undermine all of our achievements - even on good endo days!

    Also - while not suggesting it's a cure-all by any means - have you tried meditation? I've found it help me learn to focus on the present moment, so it may help you retrain your brain to be able to enjoy hobbies etc.

    Sending you a virtual hug :)

  • I'm currently on a waiting list for therapy and on multiple anti depressants. It certainly does make me struggle so I almost never have a good day :(

    Thank you. I will definitely try it someone I know quite well swears by meditation so I have been meaning to give it a go!

    Thank you for taking the time to reply, you have no idea how nice it is to feel like people care x

  • It's scary how much I can relate to this!

    I'm 21 in a couple weeks, can't work because I've been in constant pain for months, can't drink, can't go out and socialize like a normal 20 year old. I had a laparoscopy a week or so ago and just feel worse, it was all too near my bowel to remove.

    I don't really have any advice, sorry. I spend most of my time watching tv, doing puzzle books and sleeping. It can feel really lonely and its comforting to know others can relate in some way, even if over the internet.

    I'm on anti depressants which do help but it's still difficult when you're dealing with such debilatating pain everyday. There is a lot of waiting about for just about anything like therapy, pain clinics, surgery.

    I really hope your surgery goes well and at least eases your pain! Xx

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