Seeing a specialist : Hi ladies, I've been... - Endometriosis UK

Endometriosis UK

71,544 members52,462 posts

Seeing a specialist

ACCercel profile image
4 Replies

Hi ladies,

I've been referred to a specialist in January, as my symptoms have come back after my first lap (in October) . I've been living in pure agony, my symptoms getting worse every day (I had to give up work, and spend all my time in bed in excruciating pain). Does anyone know how long it usually takes to see a specialist?

Written by
ACCercel profile image
ACCercel
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Minnie1128 profile image
Minnie1128

They have to see you within 18 weeks as per the referral pathway in the NHS. You might want to check that they received the referral. If it's a BSGE centre you may be offered an appointment with the clinical nurse specialist before being given an appointment with the consultant. Maybe go and speak to your GP to see if they have had a response as my first referral got sent to community gynae even though I was already under a hospital but wanting transfer to a BSGE centre!

Good luck x

ACCercel profile image
ACCercel in reply to Minnie1128

I know they received it, because I received a confirmation letter. Whenever I see my gp, I tell them I haven't got any news from them and they just say 'it usually takes a while' . This is driving me crazy now. When I've been booked for the diagnosis surgery, I almost missed it because they haven't sent me a letter, I had to chase it up and found out that I'm having my surgery in a week.

KSvedenmacher profile image
KSvedenmacher

Wow, you are patient! My GP referred me to a BSGE at the end of April and I called the clinic two weeks later to ask where my letter for my date was! The letter came a week later and my appointment was for the week following. I would follow up with the consultant's secretary just to make sure they have you in the system.

ACCercel profile image
ACCercel in reply to KSvedenmacher

It's not really patience, it's more misinformation. I don't really know how things work through NHS so I try to just give it time. But I'm starting to lose it. My gp just says that it takes a while, but it's been 6 months... Some people told me it took them 8 months... I feel like I'm losing my mind, because I have to fight everybody everywhere trying to get more information or to make sure I didn't have an appointment, just didn't get a letter.

You may also like...

Seeing private specialist tomorrow - fingers crossed!!

I've got my private consultation tomorrow with a specialist! Fingers crossed he listens and will...

Got a cancellation appointment to see endo specialist this Wednesday 😁

Hi ladies. I was offered a cancellation appointment for this Wednesday to see the endometriosis...

Booked to see an endo specialist

Last 7 weeks have not been fun with back pain and pelvic pain and so in desperation have booked an...

Waiting to see a specialist

4-6 months to be seen by a specialist. Did anyone else have to wait this long? Is it normal? Or...

Help !with seeing a specialist

what would you like me to do I said refer me to a specialist for a lap so he starts writing up...