Heartbroken emotional mess after surgery

[vickiemorley]

So i am sat on the ward after having my second lap this afternoon to be told theres no visable endo on the surface of any organs. But there may be some deep so they cant see it and theres no way of finding out.... i cant tell you how broken i am after them telling me this. I am in agony everyday and have all the symptoms. Can anybody help and advise me what i can do please? 

I was diagnosed 7 years ago and told i had multipul cysts on my ovaries and the morst severe case of endo the consultant had ever seen. So it doesnt just disapear... or does it? Please please please help me i cant stop crying 

Thankyou xxx

[Tboag]

Aw you poor thing, are you being seen at a bsge centre by a endo specialist, have you had a MRI scan, don't give up, xxxx

[JeanOsborne]

Oh Hun my heart goes out to you. Sending lots of love and very gentle hugs.

[vickiemorley]

Thankyou lindle i really appereciate your help. I feel asthough i have been made to feel like im making it all up. The consultant told me they dont havr my notes from the diagnoses. I am going to contact the hospital myself and get them. 

They have said my bowel is loaded and i need to start taking laxatives regularly. 

And have given me a leaflet on chronic pain and told me to go back to gp. 

They have also fitted me with a merina coil. I really need to sort this asap i cant live like this anymore xxx

[vickiemorley]

Ok so after an awful nights sleep and horific pain all night i have looked at my paperwork and it says on my discharge letter I have a loaded/Distended bowel. And they have printed the photographs off of the POD my bowel left and right ovarian fossa pelvis (ureter) it says peristalsis seen and a picture of my uterovesical fold. So they havent checked my bladder which i am having symptoms with. They have also written there may be subclinical endo that could not be seen or treated. Can you explain what all this means please? 

I am also under a general medical consultant in manchester and i have an appointment on wednesday to see him. I want to have my facts right so i can push for an mri scan. I also have bupa cover with work and my account has just started again on 1st april so i will go through that so i dont have to wait. 

Thankyou xxx

[franathy]

When I had my lap the surgeon suspected there was more endo that he couldn't see during surgery so he referred me for an MRI scan which confirmed it and I am now being treated for that. To say they can't see it and can't find out it is there is ridiculous. By the way, I ended up travelling 200 miles from my home for treatment as my local hospital was useless too. You can always go somewhere else if you are getting the treatment you need. You will get it sorted x