Sisters in Milton Keynes

[AlexandraT]

Hi Ladies,  I was just wondering if any of you are based in Milton Keynes or the surrounding areas? There are no support groups locally to this area, but endo is such an isolating disease  it would be nice to chat to some fellow endo sisters in the area. Thanks x

[Elisamatthews11]

Hi,

I live in south Northampton shire so not far from MK, I actually lived in MK most my life! 

[Amber83]

Hi Alexandra, I live in mk.  Here if u need a chat x

[AlexandraT in reply to Amber83]

Hi Amber,  thanks.  It would be nice to meet some fellow endo sisters.  Feeling pretty lonely at the moment xx

[Shell1967]

Hi I'm from Dunstable and just been diagnosed with endo after an mri scan.i would love to be in touch Michelle x

[AlexandraT in reply to Shell1967]

Hi Michelle,  thanks for getting back to me.  Yes,  that would be nice.  Let me know how you would like to keep in touch,  I would be happy to meet for a coffee or something (actually,  probably a peppermint tea for me,  I can't drink coffee anymore!) or we can just keep in contact via email etc if you prefer.  It would be nice to share some stories/have someone for a bit of support who understands! 

Thanks 

Alexandra 

[Shell1967 in reply to AlexandraT]

Oh definitely email me at [e-mail] and we can sort something out.i was only diagnosed yesterday but have many years of pain etc.how old are you ? X

[AlexandraT in reply to Shell1967]

Cool.  I'm 39, married with no kids (endo saw to that!) You must have a lot of questions and be quite worried if you've only just been diagnosed.  I was diagnosed in 2010,  but like you had been suffering for years before.  There are loads of treatment options,  it's a case of finding what suits you best.  I find I get very fatigued now,  which I didn't so much before.  I do still go out and work though,  not going to let endo ruin my life! X

[Shell1967 in reply to AlexandraT]

Yes I work too I'm just worried as always thought I suffered with it but didn't do anything about it .i have 3 children but mri saw endo in right over all over sacro ligaments but what scares me is there is a lesion on bladder? I do wee an awful lot is this a symptom of endo ? Thanks so much I would love to meet you xx

[AlexandraT in reply to Shell1967]

Hi Michelle,  as far as I'm aware endo on your bladder is quite common (although it's not affecting me at the moment) It might be worth asking some of the ladies on here for advice about treatment and management,  as I'm sure a lot of them do have endo on their bladder too.  You must be very tired with three kids and endo!  I struggle and I don't have any kids (just fur babies) I had a scan yesterday and it looks like I have adenomyosis too now,  which means I'll probably need a hysterectomy,  but I don't mind,  I just want to get rid of this pain and fatigue.  Hope you are having a good weekend xx