Help?: Hi Everyone I have an appointment... - Endometriosis UK

Endometriosis UK

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Help?

FeliciaRose profile image
8 Replies

Hi Everyone

I have an appointment with my gynaecologist this evening and in my head i feel its doomsday. I am on the mini pill at the moment. I feel its not working. My next option is Zoladex but i really don't want to go on that. But i don't know if there are any options after that other than a hysterectomy? Im terrified as thought of hysterectomy at 24 is just beyond scary as all i want in life is to start my own amazing family. If anyone knows of any suggestions please let me know xx

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FeliciaRose profile image
FeliciaRose
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Shehulk profile image
Shehulk

Hi FeliciaRose, have you had a lap yet? The best option to treat endo is laparoscopic excision to remove the endometriosis. Hormonal treatments will help with the symptoms but will not cure endo or stop its progress. Is your gynae a specialist in endo?

Hysterectomy will not cure endo so it is not a viable option. Also, don't be too scared of zoladex. I was petrified of taking it because of all the horror stories that I have read but my experience with it was not bad at all. That said, zoladex is not a a long term treatment so it might not be the best option for you right now. X

FeliciaRose profile image
FeliciaRose in reply toShehulk

Yes have had 2 laps last year. Oh so confused now as gynae is saying now my pain I'm experiencing is not endo maybe not gynae related at all x

Tboag profile image
Tboag

Please listen to Lindle and get referred to a specialist, I've had a lap, with removal of endo and a hysterectomy for adenomyosis, now whilst that was nessesary for the adeno, it has not helped with my endo, I'm due another lap now with a specialist to look for remaining endo, and in the mean time in on zolodez 1 for the pain and 2 to see if it's worth having my overies out, please see a bsge specialist xxx

FeliciaRose profile image
FeliciaRose

I've just got back and apparently it might not be endo it might be something completely different that will never be found out. I amm so confused and lost. Can't stop crying and don't know what to do. My gynae said to carry on with the Cerelle for another 4 months and see if it's endo related or something undiagnosable :(

FeliciaRose profile image
FeliciaRose

He is an Endometriosis specialist. He is saying as my pain is so severe and bleeding has stopped for a month now that its something completely different and not gynologically related. Which he said worries him. He is setting me up an appointment with a pain specialist between now and 4 months when i see my gynae again so hopefully will have help with that. But he said that i may never ever find out what it is. Ugh! Drained and lost now Lindle x

FeliciaRose profile image
FeliciaRose

I have had MRI scans before yeah. He has operated and excised my endo just over a year ago. He now says my endo is mild (confused). I will re-read messages x

FeliciaRose profile image
FeliciaRose

He is also now saying it was mild endo. So what if hes now right and not endo i cant go to bsge centre? X

FeliciaRose profile image
FeliciaRose

Ok Thankyou Lindle again! To be honest i am losing faith and confidence as its gone on for 10 years now!! Will ask for copy of my notes for sure. Thankyou again xx

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