I have suffered from severe chronic pain for almost 10 years. And I am only 22. Right now I am in medically induced menopause (Zoladex injections) in an attempt to clear up what my specialist believes is endometriosis. In the last 18 months, I have had little or no quality of life. I am vomiting constantly, always getting bugs and infections, always in severe, unrelenting pain, emotionally drained, anxious and depressed, so terribly fatigued, just to mention a few. Here's a bit about my history with endo:
-I have had two laparoscopies at home. One was with a very terrible doctor and it is actually questionable if there was a surgery performed. The second was with a doctor who I trust a reasonable amount. After surgery he told me that he found "a little bit of endo, probably not even stage 1, not enough to cause your pain." At this time, I had no idea that the amount of endo does not relate to the amount of pain.
-Now am in the UK, have been on Zoladex injections for two months, and it is HELL. I have been in bed for all but about 2 weeks in the last two months. I've spoken with someone from EndoUK who said that some people cannot tolerate Zoladex. Any experiences??
-My specialist in the UK also thinks that I have adenomyosis (like endo but confined to the uterus).
-I have been on about 10 different birth control pills, the coil/IUD, the implant, and nothing. Nothing so far has worked. I have also seen a neurologist and psychologist to be sure that this pain isn't something else.
-I have basically every symptom of endo imaginable, but I don't have cysts that appear on ultrasounds. I don't have any lesions that show up on an MRI.
When I get home, I think that I will most likely be in for another surgery. I am TERRIFED that they won't find anything. At this point, I need a diagnosis. I can't let this rule my life any longer. I'm a student at the University of Oxford, one of the best (if not the best) unis in the world, and I have to return home and suspend my studies in order to get whatever this is under control.
Does anyone have experiences with negative laparoscopy surgeries? If so, did you ever get answers? What happened? Does anyone have experience with Zoladex? I need some help here, thank you so much!!!