Silly question? ?: This may sound... - Endometriosis UK

Endometriosis UK

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Silly question? ?

missymo profile image
11 Replies

This may sound Rediculous but can you get endo if you don't have periods? ?

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missymo profile image
missymo
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11 Replies
Red_Crumb profile image
Red_Crumb

I think women who have gone through the change or even had a hysteretomy have been found to have endo

missymo profile image
missymo in reply to Red_Crumb

Thank you red crumb desperate for answers! Going to see gastrointestinal consultant on monday. Can't live with the pain & not knowing what is causing it!

Red_Crumb profile image
Red_Crumb in reply to missymo

No problem :) Good luck for Monday hope you get some answers

missymo profile image
missymo in reply to Red_Crumb

I.l let you know how I get on.x

missymo profile image
missymo in reply to Red_Crumb

Went to see gastrointestinal consultant Monday. He was SO ignorant! ! He said it was impossible to have an anal fistula because feaces were not coming through my vagina.& that was what Ibeen waiting for for 10 months? ?? Who ARE these ignorant people that treat you like idiot & almost shove you out the door?? Gynaecology next stop...I hope!!

Tboag profile image
Tboag

Yes you can, for what ever reason you don't have periods, your body still has estogen and endo can self feed.

Ask GP fir feral to gyne, xx

missymo profile image
missymo in reply to Tboag

Thanks Tboag.glad I asked my 'silly' question now.xx

NW248 profile image
NW248

I had it all through my adult life undiagnosed. I wasn't diagnosed until 3 years after my periods had stopped. By which time it was causing major bowel problems, balance problems, ENT problems, constant low level headaches, feeling like my brain just wasn't working, breathlessness and extreme tiredness.

missymo profile image
missymo in reply to NW248

Wow NW same symptoms! !.bowels are dreadful! Thanks so much for that. Great site. Learning so much from it.x

Cuddlybarb profile image
Cuddlybarb

I had a hysterectomy and bowel surgery 15 months ago. The best decision I ever made !

I kept one ovary so that I wouldn't go into premature menopause. All my Endo was excised during surgery too.

I no longer have periods but my body still has a 'cycle' as my ovary is still working. (I still get PMT) My specialist told me that while my ovary still works I could develop more Endo problems.

So Yes, even without periods Endo can still be a nuisance!

X

missymo profile image
missymo in reply to Cuddlybarb

Thanks barbara x

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