Outcome of first appointment

I had my first appointment yesterday with a specialist gyne - turns out he is also an Endo specialist - good start!

He actually listened to everything I had to say, my partner kept quiet most of the time and only piped up when I forgot something.

Luckily no internal (as I was already in pain) but he had a good feel of my tummy, lots of prodding and poking!

Anyway, he said it might be Endo, but he suspects adenomyosis due to being in pain 24/7, in his opinion Endo only gives you pain 2/3 weeks of a month. He also thinks the burning/stinging when I have a wee coupled with the dizzy spells could be a very bad bladder infection (I've had countless antibiotics and that doesn't make any difference!)

I am booked in for a scan on the 22nd to check bladder and if they can see anything relating to adenomyosis. He is going all out as well and arranging a lap to have a good look around inside.

He asked about family plans, he might try hormones for 3 months to see if that helps, I told him I wasn't keen on a coil and he thinks it wouldn't be the way forward if looking to start a family.

The only thing I don't understand, he said I shouldn't/wouldn't be in pain all the time if it was Endo, but doing the research on adenomyosis that also says you only get affected by your cycles - has anyone else been given adenomyosis as a diagnosis? Any advice?

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2 Replies

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  • Hi, that's great, does he work in a BSGE centre, and on the BSGE list,

    I was diagnosed in March last year with endo and Adenomyosis, I was/am in pain daily some worse than others and my period week being the worse, I had a hysterectomy for my Adenomyosis in July I am older than you 40 and gave children, unfortunately my endo hasn't been dealt with properly and I'm still in pain most days, my gyne said he had a interest in endo, but I beleave he isn't experienced enough to detect endo in certain areas,

    I'm glad you gyne is doing a lap, but please read up on the nhs contract, there are certain areas/forms on endo that a genral gyne shouldn't be dealing with as per the contract, look up a lady on here called Lindle and read through her posts,

    Good luck and I'm here if you have any questions

    Xxx

  • Hi, no he isn't on the list, but works very closely with the 'top dog' in my area!

    Having my scan next week and he is sure it will show andenomyosis but I am not convinced!!

    X

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