I had my first appointment yesterday with a specialist gyne - turns out he is also an Endo specialist - good start!
He actually listened to everything I had to say, my partner kept quiet most of the time and only piped up when I forgot something.
Luckily no internal (as I was already in pain) but he had a good feel of my tummy, lots of prodding and poking!
Anyway, he said it might be Endo, but he suspects adenomyosis due to being in pain 24/7, in his opinion Endo only gives you pain 2/3 weeks of a month. He also thinks the burning/stinging when I have a wee coupled with the dizzy spells could be a very bad bladder infection (I've had countless antibiotics and that doesn't make any difference!)
I am booked in for a scan on the 22nd to check bladder and if they can see anything relating to adenomyosis. He is going all out as well and arranging a lap to have a good look around inside.
He asked about family plans, he might try hormones for 3 months to see if that helps, I told him I wasn't keen on a coil and he thinks it wouldn't be the way forward if looking to start a family.
The only thing I don't understand, he said I shouldn't/wouldn't be in pain all the time if it was Endo, but doing the research on adenomyosis that also says you only get affected by your cycles - has anyone else been given adenomyosis as a diagnosis? Any advice?