So frustrated

[Kmlittle]

Hello I'm looking for as much advice as I can get.

I haven't officially been diagnosed with endo as yet but been suffering with all the symptoms for over 10 years. I have had two laparoscopies which showed nothing since then I have had two children and two miscarriages. In the last year my symptoms have gotten worse effecting my bowel and bladder as well as my monthly cycle. As I was having so much trouble with my bowels I was referred to gastric and I was checked for crowns diese and actually diagnosed then was told I was misdiagnosed. It's been a horrible 12 months. I have lost my job with being in so much pain and being messed about. I eventually payed private to see a gyncaologist. He decided not to give me another lap but to try ovarian oblation I think it's called 3 monthly injections. I started these end of November and the pain has subsided and all other symptoms but now I'm suffering all the side effects of being in a medical menopause. He explained that if the injections took pain away it would explain it is a gyn problem leading me now to think it is endo. I'm sorry for long story and could write more. Is anyone else been through this or could tell me since they are working what happens next. Been battling this for years please help

[hmount90]

Hi sounds similar to me.

I had a lap last year which showed nothing but I am convinced I have endo I have all the symptoms. Went back to gynae last week and just got told to get the Mirena. I feel lost and hopeless tbh

[Kmlittle in reply to hmount90]

I have had pill, depo injection, in plant and mirena it's ridiculous that women feel like this. I'm so desperate to get to the bottom it's been horrendous past year. I'm fed up with the whole it's in my head feeling driving me insane. I really hope u get to the bottom of it too not fair

[Tboag]

Hi, I would suggest you ask your GP for a referral to a BSGE endo centre so you can be seen by a specialist, the gold standard of treatment is fir your endo to be excised thoroughly by a specialist,

Good luck

Xxx

[Kmlittle in reply to Tboag]

Thank you... I think I will I'm just scared I'll waste there time as I've not been diagnosed with endo officially but with everything I've suffered and being on this treatment of medical menopause it's seem the only outcome

[Kmlittle]

Yeah I've been scared as I'm sure they will just do another lap and it will show nothing or keep me on this medical menopause which I can't cope with the side effects. I just want to live and work again without being in pain or having side effects of menopause I really appreciate the fed back and anything else u can suggest thanks

[Kmlittle]

Thank you so much I really appreciate and will definitely be in touch all your information is extremely helpful.