Sorry if this is a bit of a long post but I'm at my wits end and was hoping someone out there might be able to offer some advice.
I've suffered with pain since my periods started at 12, but by 18 I was still getting heavy bleeds lasting at least 10 days at a time and pain so severe I would vomit or at times pass out. After several doctors appointments I was given the pill but this made no difference. I started university just before my 19th birthday and began struggling with the somewhat hit and miss student's GP practice. I was passed to a different doctor every time I went complaining of excruciating abdominal, thigh and lower back pain, was given pain killers and even antibiotics and sent on my way.
It wasn't until last September that Endo was brought up as a possible cause though I was constantly treated as though I was complaining about nothing and that I should be grateful for the painkillers provided - one young doctor on the gynae ward even commented that it was 'all in my head' after I was hospitalized with the pain! For months I was fobbed off with codeine by my GP, there was no talk of follow up with specialists or any advise on how to cope with pain so bad that at this point I was barely able to walk.
On hospital visit number 2 in December ( a week after having a mirena fitted) without any explanation a doctor gave me zoladex and I was sent on my way. I'm now 20 and have just received my 7th dose of zoladex having spent another 9 days in hospital recently. The pain is the same if not worse than before and on top of that I have been suffering with a cripplingly low mood for months. I constantly feel tired and have gained weight despite dieting and being as active as I can, my hair is falling out, my joints ache and anything more than a walk to the shops 5 minutes away brings the pain back into focus. Whilst I have an amazingly understanding partner, this illness is really affecting my relationship - I wake him up at night tossing and turning, have no libido to speak of and when we do have sex I get excruciating pain afterwards. I feel guilty for my constantly bad mood - the slightest thing can have me crying uncontrollably.
Is any of this normal? Will it pass? This illness has made it almost impossible to work and I have already had to extend my degree due to the amount of times I've been unable to make it to lectures. My body doesnt feel like mine anymore - I feel like I don't have any control over my life as its ruled by the pain. I know there's no cure for Endo but anyone know of any ways to help deal with pain when it comes? Do you think I should keep having the zoladex? I dont want to spend the rest of my life on pain medication and I'm not ready to have kids yet (one doctor said pregnancy is the only way to cure it?)
Sorry for the ramble and thank you for reading - i'd be so grateful for any advice!