Zoledax injections: I have been back and... - Endometriosis UK

Endometriosis UK

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Zoledax injections

rebecca86 profile image
5 Replies

I have been back and too to different gynecologist. One telling me I have endometriosis and then the last one wanted to try Zoledax injections for 6 months to see if it eases my symptoms. Bare in mind I have not had a laposcapy to even investigate what is happening.

I'm after any advice and experience with this drug.

I had my first injection on Thursday.

Thanks rebecca xx

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rebecca86 profile image
rebecca86
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5 Replies
Louoakley profile image
Louoakley

Hi Hun my doc said the same to me too they want to try everything possible before they do a lap 😁😁 what symptons do you have xx

rebecca86 profile image
rebecca86 in reply to Louoakley

in my 4 week cycle I have 1 good week when im pain free and not so tired, the week leading up to my period I get dizzy, fatigue, on and off stabbing pains in my stomach, then when I am on my period it is heavy, clotty and I am in extreme pain which I have to take tramadol for and then after my period its painful to open my bowels or when I have a full bladder, I also get so much water retention my pants don't fit me and I start to itch on my abdomen and thighs.

sex is none existent because it is so painful, thankfully its over quickly!!

have you started on these injections?

xx

Louoakley profile image
Louoakley in reply to rebecca86

Hi, beacuse I've been having terrible side affects from the coil I have just had it removed, it did help with my pelvic pain and heavy periods but gave me terrible side Affects, my doc wanted to wait a few months to monitor my bleading and let my body settle down a little, I'm booked for a scan and tranvaginal again on Friday. So see what happens from that too 😁😁 Then back to gyni I reakon, everything takes so long, I've been listening to so much bad press about it all I wouldn't no what is best next... Horrible horrible disease xxx

Oh my main symptom is hip and leg pain constantly xx

rebecca86 profile image
rebecca86

It's a nightmare. They wanted me to have the coil fitted. Gp did not agree with treatment as it does not stop pain. She tried to fit the coil but it was impossible to see my cervix.

So had to wait again to go back to the gynecologist for the 3rd time in 6 months. Now these injections. You get messed around so much. One saying one thing then another contradicting it. All the while your in agony!! Xx

rebecca86 profile image
rebecca86

I live in warrington. Cheshire. I am not that far from Liverpool women's hospital. I'm unsure where I can find a specialist.

Thank you for your advise.

They have confirmed that my womb is tilted backwards.

I have never had any problems previously about 4 years ago I had my smear with no problem.

Xx

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