Left shoulder pain: I was diagnosed with... - Endometriosis UK

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Left shoulder pain

Sam0903 profile image
5 Replies

I was diagnosed with severe endometreosis after a lap in august this year. I have been suffering for a number of years with pain but it steadily got worse over time. Im 28 and was told by my gynaecologist that they think in the next 15 years i will need to have a hysterectomy. 2 years ago i was experiencing some chest pain which out of hourse put down to too many pain killers.Since the lap i have been tryin to get fit and get myself back on track but since starting going to the gym i now get chest pain and left shoulder pain which is a bit like the gas tryin to escape post lap. Its constantly there but worse if i over stretch. Constantly a dull ache. Has anyone else experienced this?

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Sam0903
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Sharona45 profile image
Sharona45

Hi. I have had pain in my right shoulder for about 8 years. My gp sent me for physio. All that happened there was hot wet towels put on my shoulder and to keep still for half hour at a time? I have so many symptoms that I have since related to endometriosis. I thought I was a hyperchondriac!

I can sympathise with you as shoulder pain can be so severe it catches your breath.

Sharon x

Sam0903 profile image
Sam0903 in reply to Sharona45

Aw its awful i even find i get a sore chest if out in strong winds and it catches my breath. Sorry to hear you have so many different symptoms. There really isnt enough awareness of endo and how much people suffer from it.

Sam x

Sam0903 profile image
Sam0903

After my lap i was told there was a lot of endo removed etc but nothing was said about my diaphragm. I was operated on by a gynaecologist and havent been referred to an endo specialist. My nearest centre is aberdeen and havent had the chance to speak to someone who specialises in it. Can i self refer or does that need to be my current consultant that does this? Im just fed up. Hopeing to have a 2nd child before things get out of control again so currently only using pain management.

Thank you

Sam0903 profile image
Sam0903

It was on my ovaries and my womb. There was a patch on my pouch of douglas that the consultant wasnt sure about. Was sent for an mri and wasnt convinced that it was endo. Since then i havent heard anymore-there was a ? about doin further investigations but i havent heard anymore. That was in october.

Im just not sure what to do

Sam0903 profile image
Sam0903

They also showed me photos that were obtained during the lap but i dont think they would let me have a copy as i had asked previously. I will see if i can get the reports next week after the public holidays

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