Ok so this was a bit odd!!! the other day I went to pick up a heavy shopping bag and put it on my shoulder, as I did this I got a mildly painful (more shocking) pain/pulling sensation lower right abdomen... kinda where my ovary is (I guess). I have been told that it's likely that I have Endo on my right uetrosacral (SP?) ligament, could it be adhesions that are pulling from there? I have felt this kind of pulling/dragging sensation before but this seemed to happen as a direct result of my movement!
Anyone else had this happen?
Thanks
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FallenAngel1984
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Hi there i get this pain every time i hang out the washing its pretty bad. Started of mild, as time has gone on the pain has increased every time I bend ova. So could b a possibility ur endo could of come back. I would get it all checked out again if i was u xxxxx
Hi you, I get this as well, almost feels like something is caught on the inside. Well I did before my op, always in the gym when working out on my right side. Saw my consultant today and saw pics of my right ovary and ovarian fossa which had a lot of endo (now removed) so I'm convinced it was that. Hopefully when I get back to the gym I will be able to report back that I no longer have that pulling pain 😊
I hope you no longer have them too - they aren't nice!.... They have always said to me that my ovaries look normal so it'll be interesting to see what is causing all of this discomfort... the photos are fasinating aren't they! if you aren't squimish!
I trust all went well today at your post op appointment... what did they say about your return to work?
I also have this and my laparoscopy notes say i have endo on my right uterosacral ligament and right ovarian fossa - feels like your all stuck together when you stretch! x
Yes, it feels like when you catch your sleeve on a door handle!!! 😊. Like you need to unhook yourself from..... Yourself!!! 😂 not fun at all. Interesting that you didn't have it removed during your lap, did they tell you why? Not long now and I'll be unstuck hopefully!!!
Hahaha yes exactly like that! I always say it feels like a little 'peanut' shaped discomfort, that is stuck and needs to move or stretch or something, not very good at describing it!!
They didn't remove it because I have only minimal endometriosis, the lesions are not deep/infiltrating so the consultant said he did not want to put me through further surgery at this age to remove a small amount. I have since been diagnosed with Adenomyosis after an MRI scan too
I have 5 cousins/aunties with endometriosis who all got diagnosed with it when they were early 30's - by then they all had stage 4 so I guess unless they find the right treatment to keep it at bay then I may be the same in 10 years time!
Good luck on Friday lovely, hope it all goes smoothly x
Oh that sucks.... I would have been devastated if they didn't remove it and just left me to get on with it... It's not fair... I don't understand this explorative lap then surgical lap business... Do you go to a BGSE accredited specialist centre? I had my first lap 4 years ago... Not much removed - POD involvement and not much else. This time it feels much worse... Pains all the time, daily nausea, fatigue, etc... It might be worth you trying to get an appointment at a specialist centre. Talk to them and see what they say. They can't just leave that hanging over you and telling you to wait until things are really bad... That is not OK. surely treatment when there is a minimal amount is better than when you are stage 4 and in agony... You shouldn't be allowed to get to that stage. Oh it makes me so angry that it's pushed to one side so easily... If they found cancer (but minimal) they would be on it right away, this disease is just as aggressive as cancer - not as deadly but still devastating... I hope you get the care that you need soon! Take care hunny! 😊
I know so silly and frustrating! They discharged me last week as they said the next step would be surgery and mine is not extensive enough for that yet so to keep going with the coil instead (just been reading your experience with the coil, thankfully I haven't been *too* bad! I was definitely worse when taking the pill). I have always had lots of gastro appointments like you too, with constant vomiting, nausea and bowel issues - my symptoms were blamed on poor diet as a child, then a hormonal imbalance throughout puberty, then they thought I had rheumatoid problems and then endometriosis was blamed once I had finally got diagnosed. They now think that the endo & bowel problems are completely unrelated although they are triggered by hormone changes - I have more tests with the bowel specialist this week & next the joys of having a poo in a room full of strangers!!
The Endo 'specialist' I see is apparently one of the best and I was lucky to get on his list for NHS but he is usually private, he had been great up until my last appointment which is when the MRI showed I have a retroverted uterus, cycstic ovaries with the biggest measuring 3.5cm but he said that's tiny (I have no idea?), adenomyosis in my uterus, my vaginal vault (!!what a horrible name!!) is thickened and inflamed but there was no obvious endo there, as well as the minimal amounts in my peritoneum, uterosacral ligaments and ovarian fossa. I saw him in July and he was very supportive and interested in me telling me all about how there is no correlation between extent of Endo and the symptoms/pain people feel and then at last weeks appointment made me feel as though I was not severe enough to be taking up his time it was horrible
Glad you have found a really helpful specialist and hopefully will continue to get the care you deserve now! I may look into going private in the New Year too. Good luck with everything, I will keep an eye out for your posts when its all over to see how you got on . Sorry for such a long post! Good luck xxx
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