Contraception : Hey everyone. I've... - Endometriosis UK

Endometriosis UK

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rebecca86 profile image

Hey everyone.

I've currently been diagnosed with endometriosis and andometreis. Painful.. Yes! !

My gynecologist has discussed about hormones treatment.

The coil or the depo injection or the pill version.

I suffer with chronic migraines and can't be put on any other pills.

The thought of the coil terrifies me.

Any opinions on this will be most helpful x

14 Replies

Hey, I was really scared of the coil, too, but I've had it for 8 years now (on my 2nd one) and it is honestly one of the best things that has ever happened to me.

No more painful periods, and my moods are a lot more even. No more backpain, bloating, etc. I just feel overall a lot better since I've had it.

It was put in during a lap, and it took about a month to settle down, but I think that's because of the lap. When I had my 2nd one put in (you have to change them every 5 years) it was fine straight away.

My periods stopped after 3 months. No regrets and you don't have to think about it for 5 years.

rebecca86 profile image
rebecca86 in reply to LMB77

Thank you for your help. It's good to get opinions on them.

I suppose I can't carry on with all this pain. Ended up being taken to hospital by a ambulance yesterday x

rebecca86 profile image
rebecca86 in reply to LMB77

Also is it supposed to stop more endo from forming with having it placed or will it just help the pain? X

LMB77 profile image
LMB77 in reply to rebecca86

Yes, that's right. It can stop endo from forming, or slow it down, but it is different for everyone.

I had a minera coil fitted which is a ten year one .... it was nothing to do with endo as to why I had it .... only had it removed in August simply because it dislodged itself so caused daily bleeding (no pain tho)

I guess each person is different but I will say for me it was perfect my periods if I had them lasted max 2 days and were very very light . i seen the effects after 2 weeks and have never until just at the end of year 9 had any issues I 100% recommend it .... having it inserted caused no pain either just discomfort like when having a smear x

rebecca86 profile image
rebecca86 in reply to sharon1980

Did you have any side affects from it??

I was on the depo injection for a long time and it made me very ill eventually x

sharon1980 profile image
sharon1980 in reply to rebecca86

I can honestly say I had no side affects what so ever .... I only had it removed as it was near end of its life and now with being diagnosed with endo only 2 weeks ago my doc wanted me to try the pill .

What I can say is my abdominal pain with this vile edno started 12 months ago so having the minera coil didn't help in anyway with that x

rebecca86 profile image
rebecca86 in reply to sharon1980

See that's what confuses me. The coil is supposed to help with the endometriosis but you still developed it with the coil in place. X

sharon1980 profile image
sharon1980 in reply to rebecca86

its just a bloody mind field I started with symptoms of endo in march last year , constantly told I had urine infection or constipation .... I knew it was wrong so just kept fighting .... when I get the pain it usually has me in bed for min of 2 weeks feeling totally useless , its unbearable and all this is whilst the coil is in place , so for me having the coil again to try treat it wasn't an option as I knew it would not work .... but everyone reacts different to things , I have been put on the pill and have to take continuously so it stops periods completely ,I don't hold out much hope tho ...... Now a women I know has endo she says the coil has eased her pain .... maybe the best thing is to try if for a few months and see :) x

ps .... it does not hurt having it just little uncomfortable x


I had 2 Mirena coils. First I was awake for, second was fitted during my lap.

The first one I had in for about 9 months maybe a bit longer but it was horrific having it fitted. I bled for absolutely ages after having it fitted and I was in bed with pain the whole day afterwards. I gained a lot of weight on it, was so depressed, my mood swings were terrible and the pain was unbearable which is why I was sent for a lap, the surgeon (was for pregnant women not even endo!) Put it down to a dodgy coil so fitted a new one. Gave that one about 6 or 7 months but the pain and symptoms still persisted so they sent me for a colposcopy, I had cervical ectropion, CIN1 cells and actinomycosis from the coil.. My GP finally removed it because of the pain alongside actinomycosis.

I would never have one of those in again! Everyone is different but both my experiences were horiffic.

I was on the injection for 3 months after my coil and I had a little relief. Not a lot but better than the coil. The injection completely stopped my periods too. Which for me was a bonus. But I've tried all sorts of contraception and if I had to pick one the injection would definitely have to be the best.

The coil works for some people but definitely not me.

I hope you find the right contraception for you!

rebecca86 profile image
rebecca86 in reply to Milliejs

Thank you for sharing your experiences. In my mind I can't understand how putting a forgein body inside your womb when you already have problems with endometriosis and I also have andometreis can be any good. It's so hard to understand and make a decision xx

Hi Rebecca,

Sorry to hear you're suffering. I have had the depo injection and coil and the best for me was the depo injection. I agree with others as everything works slightly differently for everyone. I have found the only thing that has kept my endometriosis at bay and under some sort of control is surgery. I've had 4 laps since 15 years old and have had pain free for 4-5 years every time (i'm now 36)

You're doing the right thing exploring your options, lots of luck to you and all the best :-)

Thank you. They haven't offered to do a lab. Says there's risks but I've got a review after Christmas will push for it xx

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