Endometriosis UK
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Hello im just writing because I have recently been diagnosed with endimitriosis and I feel alone the doctors wanted me to have the coil and I had to tell the surgeon no as any contraception form of treatment I have had has made me so depressed I have contemplated suicide (I know this sounds extreme but it's very true) im scared of trying anything else and the doctors want me to have the mini pill which made me at my worst for depression where I couldn't get out of bed and bled for a month.

I found a diet cutting out alot of things which could help am I crazy for going at this on my own? I'm just so desperate and so alone?

(Sorry for spelling and grammar?

Thanks xx

7 Replies

Hi hun.

No you really aren't alone. I really don't tolerate hormones well.

I have literally tried every brand of contraceptive pill and each gave me have some kind of side effect I just could not tolerate for very time.

I had 2 Mirenas the first got accidentally put in to the wall of my uterus which caused a massive infection and made me very unwell.

I was so desperate to stop the bleeding which a few of my friends said the mirena was amazing in there opinion.

I really didn't get on with the mirena it gave me acne, weight gain, awful pelvic and back pain, constant heavy bleeding, migraines, mood swings, depression.

I had mine out after 3 months as I just could not tolerate it. Out of all contraception I had tried this was the worst I felt so down on it and for a considerable time after. I really felt that the mirena caused havoc on body and it took a long time to correct.

From what you have described I think you have made the right decision hun.

A healthy diet can help your endometriosis considerably and I have found taking some supplements have also helped.

The supplements I take are:

Omega 3




Vitamin B complex

Women's vitamin

Evening primrose oil

These may be worth trying I have found they have helped me. I know I bloods that theu have actually helped reduce inflammation markers through bloods that I have had.

Stick with it hun stay strong. Try and eat a healthy diet and don't feel bullied in to hormones

Jo xx

1 like

Thank you so much im really going to look into the diet I think x



Just seen your post and want to let you know that you are not alone and you aren't going mad. I was diagnosed a week ago after surgery to remove an ovarian cyst, and have a little understanding of how you might be feeling.

Firstly, if you are having thoughts of harming yourself please seek help, hormones and illness can make anyone feel this way, and you don't need to be on your own. If you don't feel like ringing them, the samaritans have an email address which I have used in the past. They are so non judgemental and a good way to let some of your horrid feelings out.

I am still undecided on how I will go forward with my treatment, it may be helpful for you to see your GP and discuss your concerns about depression linked with any birth control, or even your gynae consultant? I am also looking into yoga to help with looking after my mind and body, which I feel endometriosis may affect in the future.

I wish you all the best, you aren't alone x


Thank you it feels good to know that people are in the exact same position as me x


Hi there lovely,

Another person here to attest to how shitty hormones can make you feel.

I've tried every single form of contraception, each and every one of them made me depressed and some made me suicidal, you are certainly not alone. my poor boyfriend has had to deal with it for a long time.

I had the mirena coil which I personally didn't get on with and i now currently have the non hormone coil in which is helping stave off my endometriosis (had it cut out 3 months ago) and that has alleviated my symptoms marginally. However, I'm waiting for surgery to remove an unknown mass from my cervix which I'm hoping will then make the coil more comfortable.

You really are not alone, and please do not let doctors force you into hormone treatment. I had 3 months pill and then 6 months and currently still in menopause... Hormones truly mess with you.

Be strong, don't let the Endo beat you. We all have your back here, we got you lovely.

Do what you need to do to treat this. It is your body and Noone else's, don't do anything you're not 100% comfortable with

Here if you ever need to talk



Thank you its just good to know that people have had the same experience with the things the doctors pressure you to have x


Yes hun. You really aren't alone and don't feel pressured in to anything you know your body best hun. Xx


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