Having had endo since I was 16 I'm now 35 , I have been told now it is stage 4... Which in itself is tough to deal with .
I also have to deal with my left overy being fused to my bowel a twisted Fallopian tube ontop of ashermand syndrome, recently been told I have nk cells and a mutated blood gene also. Have also had early stages of cerverical cancer... Some would say I'm like a car crash I would say welcome to my life buckle up its a bumpy ride.
I take tramadol.... Diclofenic ... Naproxen ... Ibuprofen 600mg and that for when I bleed which at the moment is for about 12-14 days and then it happens all over again within about 13 days of stopping .. That doesn't include the lovely mid month bleeding.
I've had four operations multiple hsg tests internal scan external scans .... I've recently asked for an elective full hysterectomy only to be told I'm to young and I don't have children... This angers me as I am classed as infertile due to the nk cells and can not carry full term (lost 7 babies since I was 21) yet I am being denined something that will give me a quality of life I have never had......
This disease is life changing and as much as we smile it's hard to explain the pain and the life style changes we have to make to people who don't understand ....
Any help on pain management or anything would help as I am feeling lost in all this
Thank you for replying in advance