How to help my partner understand Endo? and how to deal with some symptoms.

[mazzda]

Hi All

i have suffered with Endo for about 12 years now. I have had 2 Laparoscopys which the endo was found for the past 4 years i have been fine as had been on the mini pill. i decided to stop taking it as i wanted to try for a baby and it has been over a year now that i stopped sadly still no baby. I have now started getting really heavy and painful periods and slowly the time between is getting smaller. I am extreamly hormonal all the time or just so tired that i can just about drag myself to work. My partner is getting fed up of seeing me in tears over nothing, going ballistic over something to minor or complaining that i am tired. Has anyone got any advice on how to deal with this and how to help my partner understand why i go through this as i am 26 but feeling like a hormonal teenager and it is putting strain on my relationship. x

[babypink]

well i understand im 25 years old , people dont understand inless there going through the pain them selfs, i took my partner to my hospital oppointments so he could here for him self from the doctor ,it helped him understand ,,i also let him read stories on here of people who are the same as me,, so then wen he sees the stories he says oh love these people have all got the same symptoms as you and these are all in pain,, so then he realises its not me whos just in pain with this disease ,,its all these poor women too ,then they realise how bad it is and we arnt making excuses when we are in agony and carnt have a pasionate moment with them,wen theys alot of other women saying the same they actually then believe ,or wen you say your in too much pain to stand ,,then you read them sumone elses storie on here saying the same thing ,they actually start to believe that it is that bad and you are in alot of pain and we arnt lazy and making excuses ha ha ha ,xxx

[mazzda]

yeah i will try that thank you. going to see gp Friday to see what can be done as i cant stand feeling like a hormonal teenager again. He has been quite understanding its just when im in the bath at 3am sobbing in pain he wakes up and says "it cant be that bad surly" drives me mad. just wish that people were more aware of it and the pain and symptoms to so we all wouldnt have to explain all the time. Thank you for your help i will certainly be getting him to do some homework x x x

[spice47]

Very true babypink, I showed my husband this site and ok he didnt read alot, but he definately got the gist that there are a lot of women out there suffering this problem xxx I was off work for 6 weeks last year with chest pain and probs with my circulation and infections and no-one at work sent me a card or a text and when I came back they just said they thought I had left, at least my husband was more supportive after looking at this site xxx

[wdwfan1973]

I'm sorry you're struggling. Hopefully your man will get used to it, mine has. One thing I tried to help him understand was showing him the leaflets from the Endometriosis UK website to explain what was going on with me, the pain etc and it has helped. I also take him to all my appointments which has helped him understand why I am in so much pain. I had a lot of trouble convincing my mum something was wrong, she used to get very agitated with me until I made her read some of the booklets. She has been a lot more understanding since I was diagnosed with adenomyosis.

Annabel x

[mazzda]

he is understanding but cant understand how i get the pain i spose like most men they dont understand women at all. I have had problems with previouse employers and things to with taking time off and things just a really horrible thing to have to live with and deal with if only there was a way to get rid of it for good. i have had 2 laparocopys now and am possibly looking at a 3rd and i am ony 26 makes me think what will happen by the time im 40 i dread to think x

[missingbutterfly]

your lucky im 26 and i finally was rushed to intensive care in hospital last yr i say finally because for yearsi have underogne pain and docter explorastions for pos but found nothing when last yr i was rushed to intensive care they found i had extreme case of ende my partner at the time was there and it all started with us having sex in the mornign and me bleeding soooooo badly then later going green sweating and screaming in agiony and vommiting i took him to the surgeon adn showed him the pamphlet on it to try help him understand something i didnt even undertsnad myself he instead got turned of me and left me at least your men stick around my body was not only sick he made me feel unloveable too

[missingbutterfly]

i wish i had found this site 4 months ago maybe he would of read and understod a but better as im realising sooo many things i thought i was alone with are wht we all suffer