I want to know what to say to people when they ask why I walk the way I do, and why I do not work everyday, I say I have a health condition it's endometriosis but I do not think they understand it, oh does that mean period pains? Will you have a hysterectomy? Does that mean you wont have children?
If they have read about endometriosis I just think they are misinformed because most doctors don't even have a clue, I have no average endometriosis if there is such an average.
Its more than severe, it affects me daily with varying levels of severe pain, people say is it your back, is it our leg? It feels like its all over my body, I get upper and lower back pains, chest pains, pains in my feet, hands! I sometimes wonder if there is something more serious wrong with me that no one has picked up on, it wouldn't surprise me, doctors are rubbish, well the ones I've met has been!
I just do not think I explain it properly and wonder what I could be saying to try have people understand me better. But I do not have time to explain it and when I think about it all I just become very angry and upset that it has been going on so long and I seem to be worse than ever!
They probably go away thinking endometriosis is a mental illness!
Should I prepare a flyer to pass out i when im asked about it t?!