I've been reading all the posts on this site for the past few weeks and decided now wash I me to post.
This evening I have my first appt with gynae consultant as my dr has referred me as she thinks I have endo. In november last year I went to the Dr re the bladder problems I had been having for most of the year. Beg of 2014 and Dr said it was an irritated bladder as no infection. By November I'd had enough of the constant toilet trips in the night and during the day. I'd tried leaving it longer between trips but no help. Also at the same time I was experiencing palpitations. My dr did an over active thyroid test, which was fine, and referred me for a bladder ultrasound, which too was fine. At the same time they did an internal scan of ovaries and ok. I've seen a cardiologist and my heart is fine too. I'd also noticed in the run up to Xmas that my symptons were linked to my cycle, hence the Dr referring me to gynae.
My symptoms are lower back pain, upper back pain, pelvic pain, pain in hips, bum, down legs and in pubic area. I also get pain in shoulders and neck and since November my right arm. The symptoms do get worse when I'm on my week break from the pill.
Now I think this has probably been going on for a couple of years. Due to pelvic girdle pain in my 3 pregancies, I've been seeing a chiropractor to help and do Pilates. But since late last year and hence the dr visit in november, I felt that maybe something else was going on, as although my chiropractor said my back was quite good (originally it was awful) that I shills the still be suffering.
Now over the summer of 2013 I suffered really bad with my back/pelvis etc and in the end it turned out I was highly allergic to dust mites and slightly to pet dander. So now on antihistamines. When I was 16 I was diagnosed with IBS. I feel like my whole body is just irritated. I have trouble sleeping and staying asleep - either toilet trips, or woken from pain. Always seem tired no matter how many hours I do get. Had general blood tests and all okay too.
On reading on this site and endo uk, I do think I fit the symptoms, but we shall see.
I have been taking the combined pill for the past 3 years (even back to back packets) and obviously that hasn't helped due to the pain, so that's an option for the Dr to scrap straight away. Other pills haven't agreed with me like the mini pills and the nurse says the coil will affect me in the same way as same ingredient.
So this evening I have my first appt with the gynae consultant. I wouldn't be surprised if a lap is suggested, as the symptoms have been going on for several years.
I'm 38 with 3 children, all who were all conceived really easily and it's only been the past few years that have been the issue, apart from the pelvic girdle pain.
When I was 20 I did have a lap as I had problems linked to my cycle in terms of pains, and they did think I had things like pelvic inflammatory disease for example. The lap showed nothing and was told it might get better if I got pregnant! Ignored that advise and saw a food intolerance test and found out wheat was my pain problem along with sess. Since having the kids the IBS is hardly noticeable and my pains definitely aren't that, despite probably eating more wheat than I should. Tbh stress was a major factor with the IBS.
So phew essay over! We shall see what I get out of the appt this evening, and if they do indeed think it's endo and the next steps.