Post Lap/Cystoscopy/Hysteroscopy Pain

Hi All,

I had my surgery last Monday, went in with diagnosis of unknown cause of pain (as no two doctors could agree on the cause.....I finally found an AMAZING specialist.

Came out having had my endometrioma removed and the discovery of Recto-Vaginal endo affecting my uterosacral ligaments as well.

I know it is early days post surgery but I wondered if anyone who has had recto-vaginal endo excised whether anyone has had sharp pain in hip bones.....I am unable to sleep at the moment because of the aching pain and can't walk much without feeling quite faint.

I would appreciate anyones opinion, I have doctor and nurses numbers I can call, but I tend to find this forum and the ladies on it are way more knowledgable and honest about the day to day impact of endo.

Thanks x

3 Replies

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  • Hi - I'm so pleased you have had treatment by a specialist as rectovaginal endo is the most complex to deal with, but it has to be dealt with in order to stop progression. This does mean you have had an awful lot of cutting done, probably including stripping away of adhesions as well as endo from your bowel and other places. You will be very sore inside and nerves will have been disturbed. Compare it to having major surgery anywhere else. Going on my own experience of rectovaginal I felt sore for probably two weeks or so. As things start to heal the inflammation will go down and I felt pulling and stabbing sensations as I assumed healing tissues were bonding. It's a very big thing you have done but what a relief you will feel that it all went well and your organs will be back to some sort of normality.

    Take the pain killers as recommended and just let your body heal. No running before you can walk!

    If you feel any sort of symptoms of infection such as fever or if your puncture wounds don't heal well then be sure to see your GP. But the pains you describe sound normal. x

  • Thank you Lindle, your comments and own posts on this forum are SO helpful and really does make the whole confusion of endo easier to understand and cope with :)

    My official letter from my specialist said it was deep infiltrating but he used the term 'small area' which made me think he didn't end up doing that much, but it is hard to know what they are trying to imply when they use terms like 'small'.

    It is probably just me being paranoid post op but I felt like he was implying I didn't need the surgery. Im sure that how my useless GP practice will take it anyway.

    x

  • 'Deep infiltrating' is all that mattered. What he was saying is that it was limited to that area (which is good) but as we know that is the most serious area. That made it stage 4 and needed deep cutting. The ignorance of GPs is spectacular isn't it? Can there be any other condition where you sit in front of a GP listening to what you know is such misinformation, about which you know far more yourself! I hope it all heals well x

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