Hi : Hi everyone. I am back on the... - Endometriosis UK

Endometriosis UK

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louburns1 profile image
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Hi everyone. I am back on the prostap as my endo flared up worse than ever back in August. I always had Injection into arm but got it in stomach which is tender like having stitches. Am 44 can't have hysterectomy as to much endo attached to all organs. This is very depressing and has been going on for years with surgeries being abandoned. Does anyone here see a dr in RVH or thé Mater in Belfast if so what do you think. Xx

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louburns1
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Tboag profile image
Tboag

Have you checked the bsge list of specialists, try to get referred to one on there,

Good luck xxx

louburns1 profile image
louburns1 in reply to Tboag

Been seeing dr hunter for years now. Just wondered if anyone else sees him.

Thanks for your help

louburns1 profile image
louburns1

Sorry its probably the way I have worded my post. Dr Hunter is a top specialist in Norther Ireland who has done a few of my surgeries in which could only remove some endo and adhesions has tired to do hysterectomy which had to be abandoned because high risk to other organs as they are all stuck together. Am told now for me its pain and symptoms management.

The last op was 4years ago done with2 specialists Mc Clure & Hunter.

So I am just struggling on. With stage 4.

Thanks for your reply. Xx

Hotmama11 profile image
Hotmama11

"a top specialist" hhhmmmmm I beg to differ.....I know a few who agree with me. Women deserve better care here...we are forgotten about. ...Consultants really could do more to speed up appointment and surgery times if they wanted to....consulting without notes, making you wait 10 months for a review appointment after surgery, being blunt, rude and dismissive, discharging you when you still need care (so you are back into asking your GP to refer you back)....no we are poorly served over here...

lerosethorn profile image
lerosethorn in reply to Hotmama11

All of this.

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