Welcome to Health Unlocked.
I'm sorry to hear that nothing much has changed in the past 20 years. When I was diagnosed I was told almost nothing about endometriosis - just that it had been found & that I was going on hormone treatment to stop my periods.
When I left the hospital all I had was a photocopied article with the address of a UK charity called The National Endometriosis Society - aka as Endometriosis UK. The Ward Sister had found it in a magazine & gave it to me on my way out!
it's scary when you read websites about endometriosis - and because there's so much information out there you don't know what to believe.
Sites such as Endometriosis UK offer up-to-date information as well as offering advice and support. The Support Groups & Helpline help sort out the wheat from the chaff.
Just because one woman suffers from horrendous pain doesn't mean that another woman will. Women with endometriosis can get pregnant & have healthy babies. It all depends if your ovaries & Fallopian tubes are effected. If you have healthy ovaries & tubes; then there's no reason why you shouldn't get pregnant. There is new research into why some women with endo can't conceive, which is to do with the immune system - but unless you're trying for a baby right now, that's something to think of in the future.
There is an awful amount of disinformation out there as well - so my advice is to head to websites where you know that the doctors involved are endometriosis specialists. I can recommend a couple if you'd like?!?
There are some really good books available as well - and if you'd like a list of my favourites let me know.
I have a website - but I must update my links!!! However I hope it will help you realise you're not alone out there?
Please feel free to PM me any time?
Good luck out there!!