Any advice?

[CareyBear]

I'm seeing my consultant tomorrow, I've had a lap that found deep infiltrating endo with deposits on bowel and ureter. Pain management has stopped working, mirena coil has stopped periods but not the pain, I'm on antidepressants to level my mood. There are surgical options available I think but was wondering if anyone has any useful stories/advice that will help me direct my question in the right direction?

Thanks in advance xxx

[Simonetta]

Dear CareyBear,

I have just come across your message and noticed that you have not had any reply to your post. I wonder if you might be interested in some information that Endometriosis UK can offer you.

You speak of bladder and bowel related endometriosis and the these information packs may be of help:-

endometriosis-uk.org/sites/...

endometriosis-uk.org/sites/...

bladderandbowelfoundation.org/

Ahead of a consultation with your gynaecologist, you may find it helpful to complete the following forms and bring them along with you. They are quite comprehensive forms that may help explain your symptoms when trying to move things forward with your specialist:-

endometriosis-uk.org/sites/...

endometriosis-uk.org/sites/...

As far as pain management is concerned you may find the following of use. (see page 8 onwards for pain relief options). I have also added a few other external links that include complementary therapies:-

endometriosis-uk.org/sites/...

britishpainsociety.org/

cnhc.org.uk/

acupuncture.org.uk/

Finally, Endometriosis UK offer support options that may suit. They are run by trained volunteers that have been touched by endometriosis themselves. They include face-to-face support groups usually run once a month and are countrywide:-

endometriosis-uk.org/find-l...

Online support groups are available for those people who are unable to find a support group in their area or who prefer not to attend a face-to-face meeting. They do not use webcams to maintain anonymity. Again, they are usually run monthly:-

endometriosis-uk.org/online...

Furthermore, there is a freephone helpline where you can speak in complete confidence:-

0808 808 2227

I hope this helps and I wish you well.

Take care,

Simonetta, Endometriosis UK