Endometriosis UK
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Any advice

Any advice please, I am due to have a procedure on my spine on the 30th September as the endo is now growing up it. I am petrified tbh I don't know what to expect or if I need to take anything with me, the pain is hurrendous I'm feeling really low atm and just wondered if anyone has had anything similar .

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OMG that's horrible, sorry saying that isn't going to help you is it.

I have really bad pain in my lower back that goes down my legs, feels like it's burning inside. Like you I feel really low, it's hard to be hopeful for the future but I think u have really got to think that at least someone is going to do something about it and what's worse, staying the way u are now or having something done that could potentially make it better. I know it's hard and scary but try and think positive xxxx

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Thank you so much. I know you're right I just feel so lost. And that's exactly how my pain is in my legs and I'm now using crutches. This site has been so helpful and the women are lovely . Thanks again xx

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Bless you, I really do feel for you. Wish u all the best for your op, let me know how it goes. Maybe you will be telling me to be positive after lol, fingers crossed for you xxx

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Awww thank you so much hun. Of course I will. And yes any time you need a chat I'm here lol. Thank you xxx

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Hi - I'm so sorry for what you are going through. I know you op is soon but can I check you are being treated in a specialist endo centre and not in a general hospital.

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Ty. And I know my specialist is a specialist in endo but that's all I know to be honest. I'm really frightened about this x

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Hi - this is the list of specialist centres. I see you have endo on your bowel and bladder and other places and the NHS guidelines require that this is done in such a centre. I think it's worth just checking that they are in a centre as the surgeons there have to have specialist training in excision and you would be in the best hands. x

bsge.org.uk/ec-BSGE-accredi...

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That's brilliant thank you I will have a look and let you know thanks again x

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May the Lord watch and keep you safe , the hands of these surgeons will be steady and favoured , you are blessed don't worry everything will be ok amen

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Awww thank you so much x

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All the best for your op on the 30th. Fingers crossed you get some relief X

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Thank you :) x

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You poor thing I wish you all the luck and I hope it gives you relief Xx

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Awww thank you x

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