I feel like I'm fighting a loosing battle at the moment. I was diagnosed with endometriosis last September and have been on and off work since. A recent cystoscopy has identified inflammation and open sores in my bladder. I've been on a special diet for this and got no where.
After a lot of back forth with the urology department and my GP I've managed to get them to bring my telephone appointment forward.
I keep being told it's in my head, that I need counselling and it's not my bladder. One doctor went as far as saying I didn't even have endometriosis and that I was wasting the hospitals time as they won't find anything. It's frustrating because they have identified issues and I'm having to follow stages to get a diagnosis. The doctors know what tablets I need for the pain but they can't give them to me yet.
Has anyone else experienced this? How do you get through it?