Constant pain and so confused. Can anyone relate?

Hi Charlotte,

So sorry to hear about the problems you are experiencing. I can relate to your issues. I have had mild endometriosis/or do have confused about that now. However last lap they could not find anymore or explanations for my severe pain rectal pain and a lot of pelvic pain which for a long time was put down to endo. I am 25 and never thought I would end up with the diagnosis that I now have - internal prolapse. I have intususseption enterocele and rectocele as well as uterine prolapse. I have never had children and so this is fairly unusual in someone my age, however after 1 year of hell I have a diagnosis and I can have a new surgery which avoids hysterectomy to fix everything back up. I am just sharing as previous to my final diagnosis over the last several years I have had similar suggestive diagnosis to you and similar tests done. If you think you might have the same issues, gps and general gynae/gastro are not good at dealing with it in my opinion, you need to see pelvic floor specialist centres/colorectal surgeon. The tests needed to rule this out/diagnose are not nice but if your at end of your tether like I was your dignity goes out the window. I had a colonic transit study, defeacating proctogram (even worse than it sounds) colonoscopy and MRI scan. The one that showed the specialist how severe it was, was the proctogram and the barium X-rays they take during, this unfortunately is the only way to see that your insides are collapsing and causing you obstruction when you go to the loo. its been a scary but I really feel knowledge is power and once I knew what was wrong I have been able to manage my symptoms better and I have pushed to get the treatment I need. By no means am I an expert and this may not be relevant to you at all, but I hope it helps even just to rule out. If you think I may have clocked something please ask your gp to refer you to somewhere which has facilities to do the test. Hope your feeling better soon. I am currently chained to the sofa! Xxx