Sorry if this is a long story- I feel really let down and really don't know where to turn.
I'll start at the beginning- 15 years ago when I was 17 I used to suffer from CRIPPLING and I mean excruciating stomach cramps around my period. My friends all told me I was making a fuss and the doctor's solution was to put me on the pill- and to be fair that made my periods much more bearable.
Anyway when I was in my early 20s I was diagnosed with Crohn's disease (which has made my endo diagnosis difficult because every time I reported abdominal pain it was always put down to my Crohn's disease.)
So, cut yo the start of this year- I stopped taking the pill. Family is something I want and with all the nasty meds I've been on for my Crohn's I thought my body might benefit from having one less medication in my system. The first month was fine but over 4-5 months gradually got worse until June this year.
My pain was so severe I was blacking out and vomiting, my crp markets iny blood were sky high so my GP sent me to hospital. 48 hours later (I was adamant it was NOT my Crohn's) they told me it wasn't me Crohn's but clearly something was up and they sent me off for an ultrasound. This ultrasound picked up that I had a large ovarian cyst (8cms x 7 cms) ish and off I was sent- no info, no advice, no pain relief, nothing. I asked my GP what would happen next and they said they couldn't do anything before my ultrasound results were in front of them. 6 weeks later, the pain was worse, the scan hadn't been sent and I was unable to work 4-5 days out of 6 and being self employed this hurts in a different way!!
Finally I got a referral- mid December- 6 whole months after my hospital admission and there was simply no way I could continue existing like this. so I opted to have private treatment. So I had my laparoscopy 3 weeks ago on Tuesday for a simple cyst removal. My procedure took nearly 3 hours and when I woke up I was told I had stage IV endometriosis, 2 large chocolate cysts, 'kissing ovaries' (whatever that is) and adhesions on other organs, mainly on my descending colon- which is where my Crohn's disease is most prevalent.
My consultant prescribed me 6 months of zoladex and this is where I have hit a wall. My consultant signed me back over to nhs care and my GP said its not their responsibility to give me this drug. The GP also asked me what dose I need (as if I'd know!!) and fobbed me off. So now I have my period again which as far as I am concerned shouldn't have happened and I'm having to fight for treatment when I should be recovering. I really don't k ow what to do :((
As for the endo part- I've already had to come to terms withy Crohn's disease and know how hard it is coming to terms with a life long condition- I really don't know the implications on my life, the side effects of the zoladex etc etc- I haven't had kids and am now scared this will be impossible for me- any advice or support would be hugely appreciated- I am a jumble of emotions right now but am also in agony again!!! Thank you in advance