Hi. I was diagnosed 2 years ago with endo at age 26 and had major op last year to remove a 4cm lump from sticking my bowels to my cervix and nodules growing in to my upper vagina. Despite my consultant being hopeful it wouldn't grow back, after stopping zoladex injections pains started to get bad again and I had another lap 3 months ago which confirmed endo back and need more surgery at some point.
My main question is: I seem to have. 7/8 week cycles at the moment. (I have PCOS too). Last month I ended up at my docs as I was peeing frequently and felt burning and twitchy 'down there.' I was put on antibiotics. Made no difference pains got worse and into back and kidney and groin area so another doc switched antibiotics. Considering I pay for prescriptions it's annoying! Made no difference so another doc took me off them then tarted me for thrush because of the antibiotics so more money! She mentioned the possibility of interstitial cystitis to me caused by my endo. Anyway I felt worse so another doc decided to send me for a scan as thought I had a kidney stone as my urine samples were inconclusive for bacteria but showed blood. I remember having lots of pain one weekend and even at night when I peed but my period started so put it down to this. Things seemed to settle after period.
I am now 3 weeks back into my cycle and yesterday I work up with the burning sensation down below again and today my bladder feels all jumpy and hurts when I pee. I can't face doctors dismissing me again and trying to shove more antibiotics in to me. Could the one GP be right? Can endo cause interstitial cystitis and can it by cyclic?