I am an active 23 year old, I have a tall slim build and recently suffered a spontaneous pneumothorax a couple weeks ago. I went to the ER and they found that my right lung had collapsed (THIS WAS ABOUT FOUR DAYS AFTER MY MENSTRUAL CYCLE ENDED COMPLETELY IF NOT LONGER.)and there was a small amount of fluid visible in the pleural cavity. They inserted a chest tube and immediately drained 800 ml of blood from my lung. Another 800 drained over the next day and a half. They removed the chest tube and didn't have a real answer as to why my scams and x rays showed minimal fluid but then drained so much blood from my lung. My scan also showed blebs on each lung. They immediately diagnosed me with endometriosis of the lung after ruling out trauma or cancer and scheduled me for surgery for VATs of the lung and pleuridesis. I kind of panicked and scheduled a second opinion with a gynecologist. He told me that one would normally have multiple collapses before having that surgery, and that I should wait and try hormonal therapy first. He put me on lo estrin fe, and I've been healing slowly from the chest tube. I've developed a terrible cough that has gotten worse and have been coughing up clear phlegm. I've become anemic from the loss of blood and also take iron supplements. I cancelled my surgery and was wondering what I should do next. It seems like my symptoms don't add up to endometriosis but no doctor can give me a certain answer. My period cramps are bad and annoying but hey so are everyone's. I don't have any pain during sex and I don't have heavy periods. I saw a gynecologist, pulmonologist, and cardiologist all who advised against the surgery. I'm worried about my reproductive future if it is endometriosis, I'm worried about what it actually is of it's not. Can anyone help?
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