Is endometriosis classed a disability? - Endometriosis UK

Endometriosis UK

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Is endometriosis classed a disability?

Pmpknpie profile image
6 Replies

I'm really struggling as we all are. I feel I am on the verge of losing job due to absence. My pain is constantly everyday and haven't yet found any pain relief that t works.

My work doesn't pay sick pay, I'm struggling with money due to this.

Does anyone know if there is any help out there?

Thank you

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Pmpknpie profile image
Pmpknpie
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6 Replies
Catness profile image
Catness

Hello :) I received some really good information on a post from Impatient today (I hope she comments as she is so knowledgable!) if you click on this and then scroll down to impatient you will see that it is covered: healthunlocked.com/endometr...

I am in a very similar position, am on the brink of loosing mine so I hope you find her information as useful as I did! Xx

Pmpknpie profile image
Pmpknpie

Thank you :)

I will have a read.

It's very stressful, i just wish people were more understanding in the work place. I was due to go back today, so over past few days tried to come off tramadol as this makes me tired and unable to drive, my pain just got worse, so my GP reckons I should be concentrating on my health instead of work, its very hard to do.

Thank you xx

Catness profile image
Catness in reply toPmpknpie

Tell me about it! We don't need the added stress and pressure from work but not working is just my an option as my company I work for has really bad sick pay and now I am on SSP which is really low. My GP is very supportive and thinks I need to look after myself but I any loose my job. I'm going to ask to reduce my hours and see if they go for that. I hope you get some help xx

baybeepodge profile image
baybeepodge

I have this problem too I've been off work a month with pain and the doctors are advising me nor work until I am sorted but with sick pay ending I'm worrying!

Pmpknpie profile image
Pmpknpie

That's what it's like for me, I can only get SSP and nothing else it's awful, they don't has any interest at all and are so snotty about me being off. I hate the moment where I have to ring them to update them, I feel even worse when I get off the phone. I'm at a loss, I was going to go back reduced hours this week, but do to that I have to come off tramadol so I can drive, in the end the pain was so unbearable I couldn't drive anyway! My doctor says there is no way I can drive in the pain I am in and not on the medication they are giving me. I have to think about myself, feel like no one understands how hard that is when I have so little money to live on, and now struggling to pay my part of bills.

I will just have to keep fingers crossed that my operation comes sooner or the pain suddenly calms down for me to mange! Xx

concernedhusband79 profile image
concernedhusband79

Hi all

Just a question here from a slightly different perspective. If endo is being recognised as a disability, would that imply primary carers should be given some kind of leeway by employers?

My wife is not currently working but does suffer from the illness and so having the option to call work and say I will be unable to go to work without much notice would be massively beneficial.

I work 45 mins away from where I live so jumping back in the car and leaving work for home in the event of an episode, is stressful for me too. My work has, til now, been understanding but have made it clear that not being in the office is not realistic as I am a team leader. If there is an official recognition for the condition and partners are accepted as being a primary carer, both my wife and I could relax somewhat.

Any thoughts would be appreciated.

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