I am posting for my sister as she is not to good with words, a little shy and mostly unwell.
It's a long story but thought it best I list it all.
Her pains started with a kidney stone in dec 2006, she was 17. They discovered she had a pelvic kidney. She had a few months pain free and then the pain was every 5-6 weeks. She would end up at hospital and the only thing that would take the pain away was IV morphine. It gradually got more frequent until it was monthly. A doctor in Guys in London said it could be endo and she was referred to gynae in woolwich. My parents decided to send her to a private hosptial and mr hill did a laparoscopy and found endo in about June 2007, they lasered it but the pains returned 6 days later. The episodes got closer and closer until it was every 6 days. Again she would be at the hospital screaming in agony and only morphine would help. She had another laparoscopy in 2009, and they said it was all clear. The pains continued so they decided to remove the Pelvic kidney in 2011 there was nothing for 3 months but the pain switched to the right hand side. Throughout all this time she was advised to take the yasmeen pill with no break. Early 2013 she stopped the pill and fell pregnant, as her pregnancy progressed the pains were getting worse and again she would end up at the a&e screaming and prescribed iv morphine. The pains used to only be in her back, but now they start in her groin, shoot down her leg and go to her lower back where her right kidney is. Thankfully the baby was born healthy with no effect from the large doses of morphine, yet since she was born on 21st Dec the pains are worse. It is now every 4 days, and the morphine dose has had to be increased as the pain will go for a few hours and then it comes back. On Friday it took 60mg of IV morphine before she was out of pain. Although the pain down her leg carried on. Strangely enough she took ill again Saturday which does not usually happen. When she has the morphine she cannot stop vomiting and has to be prescribed iv cyclizine (May be spelt wrong)
When she has an attack she literally cannot do anything, she is screaming with the pain and writhing in agony. She cannot speak or walk.
She hasn't been able to work for years and is now missing out on precious time with her baby. When she is with the baby on her own she is having panic attacks as she is worried the pain will
Come on her.
None of the doctors she has seen have suggested this could be the endo back , as she had a clear laparoscopy in 2009?
Has anybody had clear laparoscopy's, or had pains come back so soon after endo being removed? ( 6 days )
Has anyone had a baby, with the pains getting worse in late pregnancy and after the birth? Does anyone else have to have such high doses of morphine? Forgot to mention she has a lot of water infections where her urine is literally full of blood.
Also can anybody recommend a good doctor in London? Either private or nhs?
Sorry for the long story and so many questions but just desperate for help. X