Basically after suffering since age 10 ever since I started my periods I finally got diagnosed with endo last year March time after an emergency op/lap. As well as endo there were extensive thick adhesions and a very large peritoneal inclusion cyst. My bowel was stuck to my ovary and uterus. Since then, after trying bcp, then Mirena, which was put in wrong and got embedded in my cervix, the gynae got me on depo provera. Bn on it before over 10 yrs ago for over 2yrs. She gave me the initial 12wks to try for symptom relief and I see her a week Thurs. She said last time if no relief she would suggest pseudo menopause drugs for 6mths but then she didnt know what to suggest. She said it prob isnt just endo causing pain so will 'prob' get me an ultrasound scan this time but may need more surgery. Im a high risk for tumours and shld be scanned every 3mths but havent had one since last op. I am in severe pain pelvis, lower back, groin, left thigh and leg. Started mild blood staining 3days ago that is still there. V painful bowel movements with blood in stool and v painful wees. Morphine is not touching pain. No periods since injection but that is normal for me. I stopped straight away last time. Big tummy. Stiff, drained. Surely i should at least have less pain with d.provera? I dont know what to do next or what to ask for. Im scared bcoz i feel so ill now and i dont look well either. It seems like im running out of options. Hormones make me v mood swingy so worry about 6months of pseudo menopause drugs. Wld hysterectomy hlp? Have no kids and doubt i will ever have sadly. What advice can people give me? Is this just endo or like I reckon its more again? I feel ashamedly desperate and at the end of my tether. My quality of life is poor now.
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